Palliative and End of Life Care in Dementia

Frontline staff working in palliative and end of life care in dementia may be interested in the excellent training opportunity below, provided free of charge by NHS Education Scotland (NES) and the Scottish Social Services Council (SSSC). 

Please note that you do not necessarily need to be working toward the Promoting Excellence Framework to apply for this opportunity. 

More information and a link to apply to take part are detailed in the leaflet below:

[gview file="https://www.scottishcare.org/wp-content/uploads/2017/07/Palliative-Care-Frontline-Staff-Draft-Flyer.September-2017-002.doc"]

Compassionate Care: free online course

 As part of the Knowledge into Action at Scale work, the Scottish Improvement Science Collaborating Centre is hosting a free online course, Compassionate Care: Getting it Right. The course will begin on the 17th of July.  

The SISCC first opened this course in October 2016, at which time nearly 10,000 health and social care practitioners, third-sector professionals, managers, students and service users joined in to share their experiences of delivering and receiving compassionate care.  

The course offers an enjoyable and enlightening continued professional development (CPD) opportunity for people working across all disciplines to learn about person-centred care and quality improvement. With 15 hours of learning over 5 weeks, the course gives learners the chance to learn from experts and peers,  and share insights from their own practice. 

Participants may choose to take part in a research study which aims to increase the evidence base around online learning in health & social care. 

Latest blog from our CEO: Statistics to Shame

Statistics to shame.

Self-directed Support is the jewel in the crown of Scotland’s social care legislation. It is legislation which sets us apart as a nation which seeks to bestow increased control, choice and decision making onto those who need to access care and support. It has been rightly much vaunted and valued and it is quite clearly failing. The creation of such primary legislation requires vision, insight and not a little courage. However for vision to become reality requires equal energy, resourcing and robust implementation especially, as in this instance, where significant cultural change has to be fostered and resistance overcome. This clearly has not and is not happening. Legislation, however innovative, is merely words unless Government ensures robust enactment.

Three years into implementation the Scottish Government yesterday (11 July) published statistics on the progress of Self-directed Support which quite frankly should shame us. They describe a sorry and sad state of affairs two years into the legislation’s implementation.

They describe a situation where:

  • Only 27% of people made an ‘informed choice’ about their care and support using SDS
  • 86% of people over 65 chose Option 3 (Council managed arrangements)
  • Clients who are Frail Older are 3.5 times more likely to choose option 3.
  • 75% of all clients chose Option 3 (Council arranged services)
  • Only 9% of total clients used Option 2
  • Frail Older clients are least likely to chose Option 2.

What does all this mean?

Well of course the instant defence which will be presented is that these statistics describe a reform which is at an early stage of progress. That this is a long-term change in the delivery of care. That SDS is a 10 year strategy. All true statements but equally all inadequate explanations – or perhaps excuses – for the failure of a robust implementation of what has been described as a ‘flagship’ social care policy.

By launching the report, Self Directed Support: Your Choice, Your Right, together with others last week I offered some explanation for both these statistics – though we did not imagine they would be quite as bad – and the wider failure which SDS is in danger of becoming.

One of the reasons for this failure is that there has been a lack of robust implementation. We have allowed a two tier system to build up and the victims of such are quite clearly our older citizens who have been the last in the line of choice, the afterthought for exercising control over their care. There seems to be no real acceptance that the SDS Act was meant to sweep all former practice away, instituting a power shift and culture change in the way people receive social care. The system from initial assessment, through to budget allocation and to collaborative review is clearly failing. We are in a whole system crisis. Granted, SDS is working in glorious technicolor in parts of Scotland but in others the screen is blank.

In particular I am concerned that we are not involving older citizens by giving them the full range of choices available to them and the system is not working with providers to enable them to play their full part in this reform. We have no real evidence that information is being properly communicated in ways people know that they have a real choice. Do we know the 86% choosing Option 3 know that there were other options on the table for them? At Scottish Care we are hearing lots of stories to indicate that the transparency of choice is a mirage.  I am continually hearing from Scottish Care members and families fighting against social work professionals who are wanting to restrict choice on Option 2 and present Option 3 where the Council arranges things as a fait accompli. The old power imbalance still permeates.

The promised creativity and widening of choice which the Act heralded has been strangled by bureaucracy, deliberate blockage and an unwillingness of statutory partners to embed the radical change which has been needed. Within all this obfuscation there is the systemic age discrimination which permeates the whole of our social care system in Scotland.

So what can we do? Well simply accepting the current situation where older Scots are at the back of a very long queue will not do. Simply allowing the keys to choice to be controlled by individuals who will not give up control, loosen the purse strings and give true, transparent information to people in order to allow them to choose will no longer be acceptable. We must, together, provider and supported person, advocate and community leaders, re-invigorate an Act which has the potential to transform, renew and reform.

Some of those first steps were offered last week in a seminar to launch the report I mentioned above, and I publish them again here:

Recommendations:

1. We recommend that the Scottish Government ensure that all partners develop a human-rights based approach to the implementation of SDS and a human-rights based monitoring of the implementation of SDS. We further recommend that the Scottish Human Rights Commission be resourced and supported to undertake an assessment of this human-rights based implementation.
2. The accountability of local and national government for implementing SDS must be enforced.
3. Local authorities must move away from the time-allocation method of care assessment and delivery, which will always be at odds with any effective or meaningful implementation of SDS.
4. The use of electronic and other contract monitoring systems need to be examined in relation not only to fiscal savings but the negative impacts these have upon the well-being of the workforce and the dignity and rights of those receiving support. A rights-based approach to SDS has to be based on reciprocal trust and mutual respect rather than suspicion and distrust.
5. Access to information, and to all four SDS options, must be made available consistently across local authorities and in an independent, non-discriminatory way.
6. The Fair Work Framework should be used as a method of ensuring that individual workers’ rights are reciprocated and protected. This framework should be implemented and used by commissioning bodies, organisations and individual employers.
7. Greater focus needs to be placed on developing models of care and support that give autonomy, control, choice and decision-making to frontline workers and those whom they support rather than commissioners and contract managers.

Self-directed Support can still be rescued but at the moment the flagship is well and truly aground from the perspective of the majority of citizens in Scotland who require care and support and who happen to be over 65.

Dr Donald Macaskill

@DrDMacaskill

Care Home Awards 2017: Nominations Now Closed

Nominations are now closed.

We have received the largest ever number of submissions at over 300 completed entries.

The panel of Judges will consider the applications over the next few weeks and those shortlisted will be informed as soon as possible.

Good luck to all.

 

Scottish Care's annual Care Home Conference and Awards will be held on 17 November 2017. Please book your place at the Conference and join us for what promises to be a very dynamic and creative day. 

To view the conference programme, click here.

Bookings are now open for this year’s conference.  Tickets for this event sell fast so don’t delay!

To book your place, visit: https://carehomeconf17.eventbrite.co.uk

If you book before 17  September, you can take advantage of the early bird booking rate.

Comic Relief: Funding Opportunity for Care Home Providers

Scottish Care members may be interested in the following opportunity from Comic Relief:  https://www.comicrelief.com/grants/initiatives/care-home-challenge-fund-round-two

There will be 20 grants of between £10,000-£20,000 to care home providers from across the UK. The deadline for applications is midday on 4th August 2017 and applications must be made via the  online system accessible through www.comicrelief.com

Grants will last for between 18-24 months, including time for planning, partnership building and delivery. It is envisaged that each grant will reach a maximum of 4-5 care homes, focusing on quality of delivery led by residents and care home staff rather than volume of people.

Based on learning from Round One, Comic Relief will prioritise applications which:
• Involve residents and staff taking part in meaningful activities together, and protect staff members’ time to ensure their full participation
• Partner with a third-party activity provider which has a good understanding of the care home context and residents’ needs
• Are ‘person-centred’, planning the work in response to residents’ needs and interests, involving residents in co-designing activities, and respecting people’s choice to participate.
• Demonstrate a clear commitment to the proposed activity from the care homes involved, particularly from the managers and activity coordinators.
• Support staff to build skills and confidence so they can facilitate or deliver activities, enabling sustainability beyond the life of the project.
• Show how they are building on the findings from Round One.

NES Training Opportunity: Health & Social Care Staff

NHS Education Scotland (NES) is hosting a number of Cognitive Stimulation Therapy - Capacity Building training workshops in August. These are for individuals working with people with dementia at Enhanced and Expertise levels of practice and will take place in Aberdeen, Glasgow and Edinburgh. 

For more retails on the workshops and to register to attend please see below:

Guest post from Local Integration Lead, Elaine Rae

Great Care takes a Great Team

 Elaine Rae –Regional Improvement Lead – Glasgow - working with Scottish Care since July 2016

Talking with Scottish Care providers throughout the last year has been an excellent learning experience for me. I have heard such great stories from many courageous managers who find ways to work outside their comfort zone to do things they aren’t always sure they are ready for. Stories of how they took measured risks wherever they thought it would benefit those they cared and how this often paid off.

Like the story about one independently minded resident Alfie, who dearly wanted to go to the shops down the road for a paper by himself despite having challenges with walking. The manager and her team got together and discussed the likelihood of Alfie having a fall, but decided to be brave and take a risk to assess the situation. The following day they facilitated Alfie’s wishes, with a small caveat, to minimise the risk they sent a member of staff dressed in their own clothes to walk some way behind him (incognito) with clear instructions only to intervene if he got into difficulties. However, Alfie the determined surprised them all and went for his paper and back without a fall and only a few wobbles. On the way back he even met a few of his old neighbours and stopped for a catch up. From that day on the team agreed that they would always try to see risk as something to be measured and tested in real time.

For managers and their teams this type of person-centred approach usually leads to more activity and practice improvements and should be applauded. However it can also add more challenges to the average day, so I began to wonder,

How do Managers that are passionate about delivering great care keep finding the energy and motivation to keep doing more?  

 The answers I was given always mentioned the significance of having good people and great teams. Digging deeper Reza Najafian, a Glasgow provider  (Silverburn Care) said:

“understanding the barriers to change and being “Innovative is how we have always tackled more demands on our time, in this sector we are compelled to be entrepreneurial, focusing on solutions then working out the steps that help everyone get behind ideas”.  

In fact, problem-solving teams featured in all the stories I heard of overcoming adversity, risk or challenge. The consensus being GREAT CARE TOOK A GREAT TEAM, committed to “doing what they could  - where they were  - with what they had” this reminded me that:

So I thought I would share the top tips I learned from managers about how they get their teams to move from good to great:

  1. Get visual. Regardless of your role, or responsibilities, visualising information and ideas is an incredibly powerful tool to get your team thinking. Get off the phone, go in a room together (or a virtual room) and use pen and paper.
  2. Throw out the rule-book. Nothing is off the table or outside the realm of possibility. Avoid words and phrases like “but,” “how would we” and “we can’t.” If necessary, designate someone to ensure those phrases aren’t used and ask everyone to be honest.
  3. Work backward. Figure out the goal or ideal scenario 2 or 5 years down the road. Start there and work your way backward. Don’t worry about the “how.” Focus on the “what.” the road map will literally unfold itself.
  4.  Make a game of it. At the team meeting have everyone write a random idea down, crumple it up and toss it onto the centre of the table. Pick one idea and build on it. Ask those attending, “If you were me, how would you tackle this problem?”
  5. Write down everything. No thought is too small, and no idea is too “mad.” Anything can potentially add value to better care. You never know what word or phrase is going to spark the nextword or phrase, which could then lead to the next big idea. Get it all down on paper. Display it for all to see.
  6. Take mental breaks. A lot of leaders view social media as a time-waster, instead of recognising it as a mental break. It’s practically impossible to nurture creativity in a tired, burned-out brain. Encouraging mental breaks is the key to developing employees’ creative side and boosting morale.
  7. Take a trip. A social evening can relax your brain, making teams less focused on the negatives, and less likely to squash good ideas. The next time a solution is needed to a problem, organise a social event and get to work.
  8. Get physical. Go outside for a run, walk, bike ride or whatever activity suits. This will relax the mind, and afterward you can approach a problem or idea with a fresh brain. Inspiration might even strike.
  9. Play to your strengths. It’s a common misconception that creativity exists only in people with specifically “creative” roles and skills. In fact, any skill can be used creatively. Throw your ideas on to paper to categorise and dissect them and watch them develop.
  10. Get the words out. The hardest part of an innovation session, alone or in a group is getting the ball rolling. So just talk, or write. Start getting words out or down on paper, even if they’re borderline nonsensical. It’s all about getting over that initial hurdle, so the ideas can start flowing.

Two examples (from many) of great care stories happening now

  • 18 Glasgow care providers (and the teams they lead) were determined to enhance the quality of daily living for those experiencing memory impairment are involved in a Technology Enabled Care (TEC) project piloting two memory enhancing apps:
  1.  http://www.mindmate-app.com/our-story.html
  2.  https://www.storiicare.com

The apps above can be used anywhere with WiFi access to improve memory and cognition through the gift of story and recording memories.

A year into the project the results are looking great. People using the apps and their families are reporting improved recall & concentration. As well as more shared enjoyment in family visits because of memory and story work that is shared together as an activity.

  • 11 Glasgow providers who had been working hard to find ways to improve advance care planning and end-of-life care in their services… got involved in two Scottish Care research projects with other great teams:
  1. https://www.scottishcare.org/wp-content/uploads/2017/02/PEOLC-Report-final-.pdf  
  2. https://www.scottishcare.org/wp-content/uploads/2016/11/SC-Voices-from-the-Nursing-Front-Line-.pdf

The results of this work led to 12 recommendations. The teams who participated are now using the data to enhance practice and staff training to co-produce anticipatory care plans with people utilising their services - taking account of their wishes around planning a good life and death.

I have given the last word to David Reilly (Operations Director, Baillieston Community Care) one of Scottish Care’s consistently top providers:

Sites to inspire your team to do more great Team Work:

The Royal College of Nursing 

The Centre for Nursing Innovation

Scottish Health Innovations Ltd - Works in partnership with NHS Scotland to protect and develop new innovations that come from healthcare professionals.

Care @ Home and Innovationhttps://www.ukhca.co.uk/pdfs/DementiaHomecareDrivingQualityInnovation.pdf

 User-Led approaches to Care @ Home: https://www.theguardian.com/social-care-network/2014/feb/19/user-led-innovative-approaches-to-home-care

School of Health Care Radicals: https://www.cipd.co.uk/knowledge/strategy/development/health-care-radicals-report

 Sign up for your RCN innovation Newsletter here

Promoting Innovation in the workplace

Re-imagining care homes: our care home innovation centre

 

 

 

Congratulations to Ranald Mair on receiving OBE

Ranald Mair, former CEO of Scottish Care, has this week received an OBE for his services to Social Work and Social Care.

Ranald stepped down in March 2016 after almost a decade in post and after a career in social work and social care spanning more than 40 years.

Upon finding out about being awarded an OBE in the New Year Honours List, Ranald said:

“This is a marvelous surprise and a great honour. It is not just personal recognition, but recognition of all those who work in the care sector and demonstrates the importance attached to the work being carried out by those who care for others.

“The sector has progressed enormously in recent years and standards have improved dramatically, but the future presents massive challenges as Scotland faces growing demand and the need to provide the highest quality care for an increasingly ageing population.”

Scottish Care CEO Dr Donald Macaskill said: 

“This is a well deserved honour for Ranald who has dedicated his working life to the care of others. He has made an outstanding contribution to the wider sector and to the quality of care for older people in Scotland. In doing so, he has raised the profile of social care and helped drive key agendas forward.”

Scottish Care staff and members wish to extended our warm congratulations and thanks to Ranald.

Faith in Older People: newsletter published

The charity Faith in Older People publishes a regular newsletter, which may be of interest to our members. 

It is a small voluntary organisation aiming to enhance the quality of life and well-being of older people by working with those providing practical, pastoral or spiritual care. 

The newsletter details opportunities through training, events, research, projects and consultation and can be accessed by subscribing via the relevant area of Faith in Older People's website

 

 

Scottish Government: National Approach to Advanced Practice

The Scottish Government has been working towards the development of a national approach to advanced practice, a key strand of the Transforming Nursing Roles programme. In addition, The Scottish Government’s Programme for Government includes the commitment to train 500 additional Advanced Nurse Practitioners (ANPs) by 2021. ANPs will be a crucial part of the Scottish Government’s aim to transform Primary Care and shift the balance of care from acute settings to the community. It is envisaged that many of these posts will be developed in community settings, including within the care sector.

National Approach to Advanced Practice

To reduce unwarranted variation in practice, a national approach to the ANP role has been agreed by the Transforming Nursing Roles Group and Scottish Executive Nurse Directors as outlined in the paper Transforming Nursing Roles: Developing Advanced Practice in NHS Scotland. NHS Boards are being asked to implement the recommendations within this report which apply to them. A key recommendation is that Boards undertake Service Needs Analyses (SNA) to help inform sustainable development of ANPs to meet the needs of patients. 

Members of the independent care sector are being asked to participate in this SNA in order to ultimately have access to Scottish Government funding to train ANPs. A sum of £500,000 has been set aside for 2017/18 for this purpose. Care homes will be able to access the funding for additional training if there is an identified need, so if you perceive this would be helpful to your organisation, please complete the following needs assessment form by July 31

https://response.questback.com/nhseducationforscotland/educationneedsanalysis2017

Any requests for an extension to this deadline, should be made to [email protected]