The impact of COVID-19 on social care profile

Final theme: Profile - how has COVID-19 impacted the profile of social care services?

 

Thank you to those who have participated in or circulated the Care Futures surveys so far. If you haven't done so yet, you can still access the surveys here: https://scottishcare.org/care-future-surveys/

The final survey is focused on the theme of ‘Profile’.

In this theme we are interested to explore perceptions of the independent social care sector during the pandemic, relationships with the media, opportunities for enhancing understanding, awareness and profile and the future potential of the sector in relation to its profile.

The survey has 4 sections: Perception, understanding & awareness; Value & recognition; Media, publicity & scrutiny; and Future profile.

If you would like to see the questions in advance to help you complete the survey fully, you can download a PDF of the survey here - download survey questions.

You can also download Word copies of the survey to complete by hand or to distribute to others - download Word survey questions.

We would appreciate your support in circulating the survey as widely as possible across your networks, including to any individuals who access care and support and their families who may like to share their experiences.

If you don’t feel that you have had direct working experience with the independent care sector during the pandemic but you would like to be involved in the second phase of the programme, please let us know at [email protected] and we will be in contact in due course.

Home: a place of shielding and freedom: our CEO’s weekly blog.

I’m writing these words from the Isle of Skye where I arrived yesterday to visit family for the weekend. Every time I come to Skye I have a sense of coming home.

As the child of two Skye parents my life-story is punctuated by journeys ‘home’ to Skye; not least the activity of packing and going on the seemingly never-ending journey north from Glasgow. Decades ago, it did indeed feel like an intrepid adventure taking as it did an inordinate 12 hours for one large family to travel by buses and taxi and arrive at the place which for generations my family had called theirs. I possess memories of ridiculously hot summers spent with grandparents who seemed to me already ancient beyond years; I resurrected my Gaelic by listening in on the latest gossip; I gained insight into the strong cultural dialects of church and tradition, of music and poetry; I have memories of the rituals of crofting as my eldest son father took his part in shearing sheep, repairing byres and erecting fences.

As I grew up I recognised that deep within me was an inner truth that I sensed a wholeness of self only when I was in that space of open glens and brooding mountains, breathing in a beauty so raw it’s reality caught your breath, witnessing the vibrant power of nature in daytime storm and evening calmness. I also sensed a need to be away, to be distant, to be free and far. I now know that this was a sense of ‘home’ which despite all efforts I did not have away from this space.

To return home restores and renews, it re-invigorates, and it gives balance. I know acutely that this is not true for all and I am not blind to the brokenness of my own story. Home is not always a place of happiness but can be a harbour of hurt and a painful prison. But I also know from years of conversations with those who have never found a space to be themselves, and to feel secure and safe, that there remains a yearning and a desire to find that space which we often call ‘home.’

In this last week I have been reflecting with many others about the value of home.

I am especially mindful today of those who have spent months shielding themselves from Covid and who are being ‘allowed out.’ That is the phrase used by someone who wrote to me this past week. Fiona is receiving treatment for cancer and has been unable to go and see her father in a care home not just because the care home has been closed but because she has been shielding herself in her own home. She reflected in her letter the way in which she feels safe and secure, protected from harm and the unknown of this virus behind her windows and doors. She reflected that she was concerned about how she would cope with being away from that place of protection; a place where in her own words she has ‘cocooned herself from harm’.

Our home is a place of memory and belonging. It is not just a construction of brick and mortar, of stone and wood, though the physicality is part of what makes a place special. Home is a place and space which enables us to be authentically who we are as a person. It should be a place that we feel protected, able to be who we are without mask or pretence, able to be at ease inside our own skin.

But I also recognise that the best homes are places which enable you to have a sense of confidence and freedom to go out into the world to be changed and to grow, to fail and to flourish, and in both to be able to return with the confidence of acceptance, welcome and warmth.

So, I am thinking of those who are making that journey out today for the first time from the place of shielding to encounter and engagement with others. It is one which will no doubt be faltering at first but which I hope the rest of society will support not least by adhering to the safe practices which will keep us all safe from this virus.

But I am also thinking today about what home has felt like for those who have been caring for a loved one in their own homes. Many of them lost the packages of support which they had before the pandemic and these are only slowly getting back. Others chose to cancel care packages because they feared that workers would bring in the virus and these have still in most instances not been renewed. I am very aware from conversations this week that family and ‘informal’ carers across Scotland are exhausted and at the stage of really needing immediate support. The task of caring for a loved one is draining and depleting even of the energies of loving. Yet day centres remain closed and many sources of traditional respite are shut off to carers, including many care homes. There are older Scots at home who today are anxious about getting access to their GPs, unsure about when the podiatrist or community physiotherapist will next see them, who know that their own health has been affected by lockdown whether as an individual or as a carer or as someone who has been technically shielding.

Lastly when I reflect about ‘home’ today I am thinking of all those who I have spoken to and been in communication with in the last week about the place which their mother or father, wife or husband, grandparent has called home – their care home.

Yet another week has passed, and we still have not had an announcement about what date residents will be able to be visited inside their care home. I have said before and I fully acknowledge the need to carefully balance the risk of the virus getting into our care homes with the desire and urgent imperative to restore the rights of family and residents to be re-united. I am not naïve to the hardness of these decisions, but I am increasingly concerned that our scientists and others are not aware of the damage and effects of separation.  There are thousands who have not seen a family member for 21 weeks. Their care home is their home, a place of security and safety, a place which they have been protected in despite the ravages of this disease. There is a growing sense of anger and frustration that as the rest of society prioritises children going back to school and as snooker halls and bingo, funfairs and casinos are given dates for opening, we still do not have a date to restore life to our care homes, to allow indoor visiting, to inch closer to making our care homes back into real ‘homes.’

Home is a space and place,  a feeling and sense of being at ease and secure, of being able to become who you are and be what you dream of. Home is a place of memory and dreaming, of creating and growing. But home does not just happen – it is a work of heart and soul, of sinew and sacrifice.

Today we need to work with even greater energy to ensure that family homes are spaces where the old and ill, those shielded and in need of extra protection, feel they have the level of support and care, guidance and assurance that they need. Today we have to renew our efforts to ensure that our care homes do not become antiseptic units of infection management devoid of presence and humanity but are restored to being places of encounter and life. We need to get family back to start re-creating home not least for those whose time is in days and weeks, not months and years.

Home is the labour of those who feel the need to root their loving and compassion into a place and space, to create a cradle of belonging for family and friend, stranger and guest . When I close my senses there is only one place which webs me together. In that I am lucky. For at least a couple of days I am ‘home’ but with the conviction that we must restore and affirm that sense of home to and for all.

“In the distance day was dawning,
Comes to me the early morning,
Something tells me that I’m going home

The brand new sun shining bright
From the darkness fields of light
Something tells me that I’m going home

Going home
When the summer’s coming in
And the moonlight on the river
Shows me where I’ve been

Soft the rain is gently falling
Lightly cross the city morning
I get the feeling that I’m going home

Across the moorlands, past the mountains,
O’er the rivers, beside the new streams,
Something tells me that I’m going home

Going home
When the summer’s coming in
And the moonlight on the river
Shows me where I’ve been

As the train is rolling nearer
Ah, the feeling just to be there,
Something tells me that I’m going home

Now the skylines reach my eyes
The ridge stands out in highland skies
I just can’t believe I’m going home.”

(Lyrics of ‘Going Home’ by Runrig)

 

Donald Macaskill 

 

Graduate Diploma in Integrated Community Nursing – last chance to apply

Applications for the Graduate Diploma in Integrated Community Nursing closes tomorrow (31 July). There are 50 funded places available for nurses to take advantage of. 

This course is a new 2 year part-time practice-based programme designed for nurses working at level 5 of the Career Framework for Health (Agenda for Change Band 5 equivalent) in district nursing, care home nursing, prison health and general practice nursing. It will equip them with the range of skills and knowledge they need to work flexibly and to their full potential across the integrated community nursing team.

The programme is suitable for nurses who are experienced or newly qualified; new to the community setting or experienced in the setting but with limited specific continuing professional development; with or without a first degree. The programme forms the first part of the NHS Education for Scotland (NES) integrated education pathway (Figure 1) and will enable nurses to continue their studies at postgraduate level to qualify as specialist, advanced and consultant nurses in district nursing, care home nursing, prison health and general practice nursing.

For more information please see: https://www.nes.scot.nhs.uk/our-work/community-nursing-graduate-diploma/

The Graduate Diploma forms the foundation element of the NES Education and Career pathway. It is now available through the University of the West of Scotland and Queen Margaret University. For more information click the buttons below:

New nursing blog for July from our Transforming Workforce Lead

Nursing a career for life, past, present and future.

Nursing has always been viewed as a job for life, a vocation that spans over 40 years that gives you the ability to grow, to diversify and offers the opportunities to have a flexible worthwhile career, where there is real potential to make a difference. This can be on an individual, national or international level. The possibilities are endless.

Back in the day when I was a student nurse, nursing was all about matrons and procedure manuals. Often feeling like an extra pair of hands, following doctors around, and rarely questioning anything that was said. Thankfully nursing has moved on from the medicalised model, not only nurses but student nurses are now empowered and leaders in their own right. It’s hard to believe that back then we had no access to internet or social media, all which without question has today catapulted nurse education and the profession as a whole.

As a student nurse you work alongside many nurses within a variety of different specialisms and you soon determine those who are role models. Despite having trained in the 1980s I can still remember those nurses who inspired me and as importantly those who did not. This often helps reaffirm the areas you wish to work after completion of your training.

The natural progression for the majority of student nurses is to go straight to a post within the NHS, however it is imperative that we expand the opportunities for newly qualified nurses to come straight into the social care sector. The sector offers a real potential to grow and develop your professional autonomy, clinical development and management.

Recent months have saw an influx of student nurses into the independent sector who previously wouldn’t have been placed within a care home, with this exposure being viewed by many as positive and insightful. I am delighted to say this has resulted in some third-year students due to take up their first staff nurse post within the independent sector. Despite these numbers being low in comparison to NHS placements there will be a concerted effort to extend student placements within care homes as we commence the new pre-registration nurse training.

Nursing without question made me who I am today. I grew up quickly, had never witnessed death or dying or what it truly felt like to be needed, respected and the pride you feel when people share their vulnerability and inner most fears. I do hope that every nursing student still experience these feelings, as I believe this is the foundation to being a professional nurse.

Being prepared to make the transition is something that many students worry about especially in today’s climate when everything appears to be under the microscopic. Preceptorship has never been more important and needs to be robust to ensure newly qualified staff have adequate clinical supervision, especially in the first 6 months after qualifying.

For many staff qualifying is a reality check and unfortunately staff continue to leave post registration within the first few years of qualifying. Recent figures in 2018 suggested almost half of all nurse who leave are under 40 years old.

As nurses we often hear the phrase ‘I couldn’t do your job’, the fact is it is probably true. I don’t believe anyone can be a nurse , it’s not a job that anyone can do if it’s not intrinsically part of you, in your heart to care, the desire to make change happen, ensuring improvement and keeping people safe. Unfortunately these qualities alone are not enough to cope with some pressures that are currently placed on staff. This is also apparent in the numbers of students who do not complete their training. According to figures released last year by the Nursing Standard, the attrition rate was around 24 per cent.

Looking back and I can’t believe where the years have gone. I never imagined when I completed my training the different roles I would’ve undertaken and that many of those I trained and work alongside continue to be in nursing today, as clinicians, nurse educators and senior managers, although I must mention approaching retirement fast.

Sadly, despite the satisfaction nursing offers it has unfortunately gone through many years of being an undervalued profession despite pre-registered nurses now trained to graduate and master’s level. We were seeing a reduction of nurses ahead, due to upcoming retirements, an increase in nurses choosing to take early retirement, and the exiting of EU nurses post Brexit. In addition we also had a workforce that was struggling with high level of staff absence due to mental health related absences,  often cited as a result of short staffing, and too many priority areas being placed on staff .This had undoubtably placed massive pressures on the existing workforce.

This makes an urgency to impress on staff the importance of being empowered and how promoting leadership with the sector will ensure better job satisfaction and peer support. I often come across articles where newly qualified staff express how overwhelmed they feel and question whether they can deal with the daily pressures. Nurses work at the coal face of a fast-paced health and social care system that can often feel dysfunctional, which is exhausting. It can often feel like you are on a rollercoaster as one thing is resolved something else comes behind to continue the pressure.

My response would be that nursing has always been challenging and this will never change and the reason its challenging is because it’s a job that really matters and is reliant on the right people to influence change, which can improve outcomes for people we care for, all the reasons for becoming  a nurse in the first place. Being part of a great team and peer support is crucial to ensuring you develop the coping mechanisms to grow strong.

In 2017, the 2030 vision was published. The aim of this document was about showcasing the work nurses do, to raise the profile, define competences and ability to develop in an evolving health and social care world. In this the ‘Year of the Nurse’ we have certainly highlighted the role of nurses, their ability to rise to challenges, be solution focused and be skilled to undertake a level of practice required to ensure patient safety during a time of the greatest uncertainty, and risk to their own personal health.

In recent months we have witnessed the dedication of nurses who responded to join the emergency register as well and the redeployment of nurses alongside other healthcare professional, none less than the high numbers of student nurses who came forward to be part of this dynamic professional workforce. In addition, we saw an increase in the nurse register as a result, however we must continue to see this now and into the future. As we approach the highest levels of staff retirements within the next 5 years it is imperative that we recruit and retain staff more than ever to be able to provide a sustainable health and social care workforce.

We have increased student placements and funding for students to assist in getting more people into the profession and post covid19 most universities have reached their admission targets with many over prescribed. However we must be mindful of the changes to the curriculum, and the extension of online training may result in higher dropout rates over the next few years, alongside the uncertainties that have been presented with this pandemic to staff welfare.

Staff burnout was already at an all-time high therefore it is paramount that staff receive appropriate support to ensure they are fit to practice, and part of this is to ensure their physical and mental wellbeing. Nurses often view stress as normal therefore if we genuinely care about our staff, we must look to ensure we hold onto them and avoid the risks of putting additional pressures on those staff who are left on the ground.

We must reflect that for many staff who made the decision to leave that this was not necessarily because they really wanted to let their registration lapse, but that they felt defeated or that they were no longer doing a job in the way that they wanted to , were not valued or understood and most importantly not listened to. It’s important to note that this is rarely a reflection on ability but more likely to be due to professional frustration. Nurses need to know this is not the end and in nursing we all can face difficult situations that can push us to the edge. I challenge any nurse to say they haven’t had a period in their career that they didn’t want to throw in the towel.

In a career that could and should be for life, we need to change thinking to be inclusive of all aspects and sectors and ensure there is a real determination to work together to prevent boundaries and assist staff wishing to work across these sectors. There is a real benefit to working in collaboration having shared national approaches and systems across NHS and the independent sector, not as a joint entity but as a respectful partnership which is mutually supportive.

Recent months have without question pushed the transforming nursing roles agenda by identifying the current roles being undertaken by nurses and how these can evolve to improve practice, data collection and ultimately job satisfaction to improve staff recruitment and retention.

Each sector offers the potential for each individual nurse to work to the top of their license and the social care sector ensures gerontology nursing is given the credibility it has not always been given in the past. The access to future funded post registration educational programmes within the sector will ensure this.

This specialism is going to evolve rapidly in light of the increasing ageing population and the fragility of our older people. This will require significant knowledge and skills to care for people who have debilitating long term conditions and therefore the workforce development will require significant focus and centralised investment. Rehabilitation and recovery will play a significant part moving forward post covid19, ensuring those people requiring 24 hour care are not excluded from the right care at the right time by the right person.

Every role needs to have scope to grow and the more exposure to the independent sector by student nurses, NHS boards and higher education institutes the more we will work inclusively which will without question ensure student nurses will have a more rounded experience and career trajectory, and we will hopefully see more newly qualified nurses coming straight to social care nursing, or considering this as a prospect at some point in their career. Personally, I believe rotational peripatetic posts and taking up posts across all sectors throughout your career can significantly enhance knowledge and skills and empower staff to think more strategically.

This is the ideal time for many who may have left to return. As previously highlighted nurses leave for many reasons and perhaps this is something that the NMC as the registering body should consider recording as a means of anticipating the potential to offer an alternative to coming off the register as often this is due to a negative set of circumstances and can often be a reactive response. Within the independent sector we may have staff who decided to let their registration lapse and work as in a care role rather than a nurse and may now wish to return to practice.

There are two new return to practice programmes being offered in Scotland later this year and at the beginning of 2021 which will support staff to return to the practice by taking into account their experience and placing them ideally within future staff nurse roles, assisting the issues we currently have in unfilled vacancies. This is something I encourage providers within the sector to consider supporting the current recruitment processes.

There is no question the future has some uncertainty, but we have the real potential to have a workforce which will be skilled and fit to cope with the challenges ahead and beyond. Staff have always shown significant resilience, but this has been none more evident than over the last few months, with those student nurses who took up the paid placements being testimony to this.

It is every single nurse’s responsibility to do everything in their power to encourage, support, mentor and make others understand the importance of being a nurse and recognise what the new workforce must look like.

In this the year of the nurse the profession has without question been tested , despite our staff having given their all ,within a political climate that has been less than supportive and at times downright derogatory to our nurses we will end this year stronger .

This is our year to be strong, be a collective and demonstrate what a privilege it is to be a nurse and the crucial role we play and will continue to play as the backbone of our health and social care sector.

Jacqui Neil

Transforming Workforce Lead

Scottish Care comments on pressure on care homes to accept hospital patients

In the early days of the pandemic the wider societal and political concern was the risk that the NHS acute sector would not be able to deal with a massive increase in patients requiring treatment for COVID19. It was at this time that there as a focus on creating capacity within NHS hospitals by ceasing routine non-essential treatments, by maximising the availability of respirators etc. At the same time there was a push to discharge individuals who were fit for discharge either to their own homes or to care homes.

In ordinary circumstances an individual is discharged when they are clinically fit. Before Covid19 this was often a process which was delayed as a result of the non-availability of care home beds. This was not because the beds were not available but because the funding from public authorities was not sufficient to enable these transfers to take place. Yet even before COVID19 there were circumstances where at best the eagerness of hospital discharge had led to a breakdown in relationships with the care home sector. The most commonly cited instance was where a clinician considered someone to be able to be supported in residential care, they were then discharged and within hours it was clear they required nursing not residential care. So, looking back from this position we have to be clear that the process of clinical discharge into care homes before Covid19 was one which was not always smooth and frequently problematic. As a result there was often a local distrust in the system.

Because individuals were not tested at the point of discharge, despite the requests of the care home sector at the time, there was a real concern that people who entered care homes might be infectious. Initially people were barrier nursed for a period of 7 days and later this was extended to 14 days. However, with growing knowledge about asymptomatic presentation and with the different ways which COVID19 presents itself in older people it is inevitably the case that regardless of the use of all appropriate PPE and protection measures being implemented that some people entered care homes and effectively ‘seeded’ the virus in the care home.

Dr Donald Macaskill, the CEO of Scottish Care states:

“Our intelligence from members throughout this pandemic has been that for many of them, despite undertaking stringent PPE and following the Guidance on barrier nursing at the time, the lack of testing at the point of discharge from hospital has negatively impacted upon the sector. It is the belief of many of our members that individuals showing no signs or symptoms were effectively moved into care homes which thereafter had outbreaks. Individuals may have been clinically fit for discharge but that did not mean they were virus free. The clearing of the decks of the acute sector failed to appreciate the pressure the care home sector was facing at the time.”

Scottish Care response to Social Care Support Fund

Scottish Care welcomed the establishment of the Social Care Support Fund recognising that no worker should experience financial hardship as a result of self-isolating or being tested Covid19 positive. This in part recognises that the money paid by national and local Government to independent providers has never included payment of SSP and other terms and conditions above the basic minimum. In some senses this is the State taking steps towards addressing its inadequate funding of social care services and workers over a number of years, and something that we hope will be corrected more fully beyond Covid19.  

The Fund requires employers to pay the worker then to recoup the monies thereafter. Despite assurances and ongoing work on resolving issues administering the fund, it is clear that it is often taking weeks not days for employers to receive these payments. Given the very real financial pressures which have resulted from Covid19, social care employers are in an extremely fragile situation and this makes it extremely difficult for monies to be paid out without urgent guarantees of recompense. Sadly, confidence that payment will be timely is lacking at the present time given the experience of delays in Scottish Living Wage and sustainability payments being passed on to providers when they should be.  This puts employers in an extremely difficult position of wanting to ensure that staff received the payments they are entitled to whilst running the very real risk of going out of business whilst waiting for such payments to be passed on.   

We are working closely with the Trade Unions, COSLA and Scottish Government to give the necessary assurances that will make the system work effectively, which it is not at present.

Digital Safety Huddle Open Webinar – 3 August

Scottish Care is organising a webinar which focuses on the Digital Safety Huddle Tool that will be rolled out in care homes in some parts of the country from 8th August. Therefore, we strongly encourage care home providers to attend this webinar.

This will take place on Monday 3 August at 1:00 PM. Derek Barron (Erskine) and the NES Digital Team will be available to do a demonstration on this tool and answer any questions you may have.

The webinar is open to all care providers and not just Scottish Care members, registration is required to access this webinar.

Registration link: https://us02web.zoom.us/webinar/register/WN_NgzXcTELRi-LzAJCJx9J4g

After you register, you receive an email from Zoom with a unique link to join the webinar (subject to approval).

Please contact [email protected] if you have any problems accessing this webinar.

Job Vacancies – Partners for Integration

Scottish Care are seeking to engage a number of Development Officers and Independent Sector Leads to support the Integration of Health and Social Care.  

These posts are hosted by Scottish Care and involve working closely with care providers and partners and ensuring sector involvement in the delivery of the integrating of health and social care.

Closing date: Friday 7 August 4pm

Please click the buttons below for more information on each job vacancy.

Share wellbeing impacts & supports through COVID-19

Fifth theme: wellbeing- how has wellbeing been impacted and what supports have been useful during COVID-19?

This week the survey is focused on the theme of ‘Wellbeing’.

In this theme we are interested to explore the impacts of COVID-19 on wellbeing for staff, residents, families and people supported as well as the forms, use and value of wellbeing supports.

The survey has 3 sections: Wellbeing impacts, Forms of support, and Future wellbeing.

If you would like to see the questions in advance to help you complete the survey fully, you can download a PDF of the survey here - download survey questions.

You can also download Word copies of the survey to complete by hand or to distribute to others - download Word survey questions.

We would appreciate your support in circulating the survey as widely as possible across your networks, including to any individuals who access care and support and their families who may like to share their experiences.

If you don’t feel that you have had direct working experience with the independent care sector during the pandemic but you would like to be involved in the second phase of the programme, please let us know at [email protected] and we will be in contact in due course.

Thank you to those who have participated in or circulated the Care Futures surveys so far. If you haven't done so yet, you can still access the surveys here: https://scottishcare.org/care-future-surveys/

Dying of a broken heart: the pain of care home deaths. A personal reflection.

I interrupted one of my many Zoom meetings this week to go outside briefly and stand with others as the hearse carrying the remains of a neighbour left his home for the last time accompanied by the small family group able to attend his funeral. I was saying goodbye to a man of quiet dignity and constant smile who had left his home for the last time just before the pandemic as his dementia worsened to the extent that he needed to enter a care home.

As I stood there clapping with others in memory and thanks I could not get out of my mind the words his now widow had spoken to me a few days earlier. I had met her and as I expressed my condolences she told me of how she had been unable to see him for four months until his last few hours. She had nothing but praise for the care home staff but she was deeply upset about restrictions that prevented them from being in contact as they had for virtually every day of their married lives. I parted with her words ringing in my ears. “Donald you have to sort it. His death certificate said he died of his dementia, but I wanted them to write in it that he died of a broken heart, but they wouldn’t. He died of a broken heart. I just know it.”

As the weeks have gone on fewer and fewer people thankfully have died from Covid19 in our care homes and this past week we have seen the lowest level since the start of the pandemic. But sadly, in the rhythm of time there are still people dying in our care homes as there always has been and always will be. Care homes as I have said elsewhere are increasingly hospices in the heart of our communities; places of living in fullness and love until the end; places which give solace, comfort and care as folks come to the end of their days. So, there is nothing new about death and dying in our care homes. Indeed, over the years the ability to get to know residents as individuals, especially those wracked with dementia and its horrific hold, have made care homes places capable of giving people as personal and as appropriate an end as possible.

During Covid19 the natural humanity of caring has been interrupted. Part of the rhythm of a death which is expected is the necessary and essential presence of family and friends, to give assurance, offer comfort and to simply be present. Being with the dying is our greatest gift to a human life; surrounding a life with love and memory, holding one another in our first steps of grieving are intrinsic to good bereavement. The times I have been privileged to be with someone as they have died will forever be etched in my soul, without diminishing the aching sadness and emptiness that those moments brought. I have learned more about life in the presence of death than from any textbook or any teacher.

“He died of a broken heart.” Living is not just the intaking of breath into the frame of a physical body of flesh and bone; living is not just the occupying of space and earth; living is not just being there. Living is about relatedness,  knowing that you are part of a story, being assured that you matter, that your voice is heard and your personhood upheld. What is the point of simply continuing to be here when all that is of worth and meaning, of value and heart, is absent and held back from you. The number of our days are as nothing without a quality within those days.

So it is that I do indeed believe that there are many others just like my neighbour who have died and are dying in our care homes not because of the vicious virulence of a virus but because of the measures put in place to protect and save their lives.  I am definitely not saying that actions taken to protect are misplaced or wrong, certainly not in the earliest days of this virus. But now we have entered the 20th week of lockdown in our care homes and with regretfully no immediate move to visiting indoors, I have to with all honesty and I hope with integrity and sincerity, question whether we are now doing more harm than anything else.

I cannot imagine what it is like to have been in love with someone for decades, to have so become inter-twinned with another, that your steps are as one, your memories wrapped up in an alongsideness so intimate that there is nothing to separate them – and then to be separated, kept distant, only able to touch through glass, or speak through a machine. I cannot conceive the agony that it has been and still is for so many hundreds of not being able to touch and hold and be with those you love. I dare not imagine what it is like not to be with those I love.

There are loads of attempts to find a vaccine for this virus. But what I want – in the sad awareness that this virus will be around for many many years to come and that a vaccine may not work for all – is that we put equal effort into finding ways in which we can  better balance protection and presence; that we can devise ways in which families can be with their loved ones so that the scar of separation is removed from our care homes.

I have seen it before, and I know deep inside myself the truth that my neighbour spoke. It is possible to die of a broken heart; to turn your face to the wall because the voice that gives you confidence is not heard; the hand that strokes you in assurance is not felt; the smile that lightens your soul is not present. There is no science for such an assertion only the evidence of experience and the truth of knowing.

In the weeks and months ahead, we have to get better systems of Infection prevention and control for our care homes which are appropriate to their nature as a home first and foremost and not simply adopt measures and approaches from an acute hospital setting. In the coming weeks we have to give very serious consideration as testing techniques develop to appointing at least one relative for each resident to enable the continuation of contact and human presence throughout any future outbreak. Over the next few weeks we have to really start to hear and listen to the voices of those who have autonomy and rights. We have to stop doing to and for and start listening to the voice of resident and family.

We cannot mend a heart which is broken; we cannot bring back a life which is lost or fill the emptiness of the days which hundreds have experienced, but moving forward we all, I believe, need to commit to responding better and doing differently in the future of this pandemic.

There are few poems about loss and dying more beautiful than Maya Angelou’s ‘When Great Trees Fall.’ I end this piece with the last stanza of her poem because it reminds us that when anyone dies they leave not just a memory but a call to action based on their living. The hundreds who have died in care homes in the last few months, my neighbour amongst them, need action not memorials, they deserve change so that no more hearts may break, and to that I for one will commit.

‘And when great souls die,


after a period peace blooms,


slowly and always


irregularly. Spaces fill


with a kind of


soothing electric vibration.


Our senses, restored, never


to be the same, whisper to us.


They existed. They existed.


We can be. Be and be


better. For they existed.’

 

Donald Macaskill