Scottish Care launches new report on Palliative and End of Life Care

Today (8 February 2017), Scottish Care has launched its latest report relating to the role of social care staff in palliative and end of life care.

‘Trees that bend in the wind: Exploring the experiences of front line support workers delivering palliative and end of life care’ is a 47 page report which provides a forum where the views, experiences and values of social care staff in palliative and end of life supports are explored in detail.

It has allowed those involved in the front line of social care to:

  • speak for themselves
  • share their insights on what constitutes good palliative support
  • express their frustrations and anxieties, and
  • explain what keeps them going in the face of such emotional challenges.

The report highlights the contributions of 50 individual staff in care home and care at home services in four areas of Scotland who took part in structured focus groups. The research took place in Glasgow, Edinburgh, Highland and Dumfries and Galloway but the insights are without boundary or geography.

The report was launched on the 8th February at an event which brought together over 100 stakeholders from across Scotland who explored together its insights and recommendations.

At the event Scottish Care’s Chief Executive, Dr Donald Macaskill, highlighted Scottish Care’s commitment to ensuring that the often unrecognised and undervalued contribution of social care staff in palliative and end of life care was given a greater prominence at both policy and practice levels.

He said the aim of the research was to ensure that everyone in Scotland was able to achieve a truly person centred end of life experience by being supported by staff who were properly resourced and supported. He reflected on the way in which the ‘tree that bends’ (an image from one of the workers to describe their role) was in danger of breaking unless front line care staff are adequately supported.

Dr Macaskill encouraged all stakeholders to work together with Scottish Care to ensure the recommendations in the report, which arose directly from the insights of the frontline workforce and which included a call for a National Conversation on Dying, were enacted as soon as possible. In addition, the report highlights the potential contribution of social care staff to supporting the work of Integrated Joint Boards in achieving positive end of life outcomes, including the benefits of joint team-working and the value of Anticipatory Care Planning.  It also stresses the need to explore the role of commissioning practice in relation to palliative and end of life care in social care delivery.

We hope you will find reading the report of interest.  It is also available in hard copy format directly from the Scottish Care offices.

We would be more than happy to meet with individuals and organisations to discuss ways in which we could work collaboratively in the implementation of the report’s recommendations.

If you have any questions either about the report or our work with front line support staff, please don’t hesitate to contact Katharine Ross, Becca Gatherum or Donald Macaskill.

 

 

We are the trees that bend in the wind: watch our animation


This week, we published our new report on the role of social care staff in palliative and end of life care.

This animation “We are the trees that bend in the wind”, pulls together what we learned from the 50 people we interviewed.

People told us that the role is challenging and often undervalued, but that it can be immensely rewarding to be with someone at the end of their life. We have made recommendations  a series of recommendations on how front line social care staff can be better supported to deliver this role.

You can learn more by reading the full report. 

 

 

Scottish Care responds to National Care Standards Consultation

The Scottish Government recently ran a public consultation on the new National Health and Social Care Standards, to which Scottish Care submitted a response.

This response was informed by the National Care Standards Consultation event which Scottish Care ran for members on 10 January 2017.  Thanks to all those who participated.

Scottish Care’s response can be accessed here.

Now that the consultation has closed, the Scottish Government will review and analyse the responses.   The Project Board and Development Group will consider the findings and a consultation report will be published in Spring 2017.

The final Standards will be published in Spring 2017, and will be implemented from Spring 2018.

For more information about the new Standards, visit http://www.newcarestandards.scot/

Innovative care at home

Older people have benefited from a pilot project which saw Glasgow Caledonian University (GCU) physiotherapy students provide care at home.

The project was delivered in partnership with Carers Direct, NHS Highland, NES, Scottish Care, and the Care Inspectorate.

Fourth year physiotherapy students undertook placements with two providers, Carers Direct, a care at home service, in Argyll and Bute, and an NHS reablement physiotherapy service. The placement combined time spent in a physiotherapy practice and care delivered in the home.

The Care Inspectorate praised the work of the students and tutors.

Karen Reid, Chief Executive of the Care Inspectorate said:

“For people who receive care at home, it can sometimes be difficult to get out and about to access services like physiotherapy.

“We were delighted to be involved in this project and it demonstrated that by rethinking the way care is provided, we can better meet people’s needs and provide the care which matters to them, in a setting which suits them.

“We know that as more people are living longer, healthier lives, rethinking the way services are provided will become more important.”

 

GCU Senior Physiotherapy Lecturer Douglas Lauchlan said:

“The integration of health and social care and reablement of clients at home and in community settings is a strategic drive of Scottish Government. It is important that physiotherapy students, many of whom are graduating, work alongside acute NHS services and independent providers of care within the home.

“In addition to the students’ learning, all partners involved in the project gained an insight into a fast-developing area of care where collaborative working is key to its success.”

 

Student Lindsey Justine Chisholm, from the School of Health and Life Sciences, delivered care to patients before returning to Canada to work in physiotherapy and kinesiology.

She said:

“Delivering care in the home offers the patient greater choice. Seeing patients in their own environments allowed me to tailor and understand the challenges many of them experience on a daily basis. Working as part of a team, we were able to learn from patients, our colleagues and carers and provide the care needed to patients. ”

New blog from our CEO: Challenging the sexual taboo

Challenging the Sex Taboo:

One of the privileges – and challenges – of doing my job – is being invited to speak at a range of events and conferences. Yesterday I was taking part in a seminar in East Dunbartonshire Health and Social Care Partnership on ‘Capacity,
Sex & Relationships.’
I was asked to reflect on the issue of older people’s sexuality in care settings.

My preparation for the seminar highlighted for me the relative dearth of literature and academic study on what is one of the most fundamental parts of what constitutes our identity and what it means to be human. There are some good pieces of work not least from Alzheimer Scotland, the Terence Higgins Trust etc. but not a lot.

This might be because there are still massive social taboos around the issue of older people and sexual expression. Its almost as if older people and sex is for our age ‘the love that dare not speak its name.’ But people are living longer and healthier lives and why should sexual expression end when we reach a particular age, almost as if our sexual selves have a use-by date attached.

But pervasive negative attitudes serve to consolidate the taboo. People consciously and unconsciously suggest that sex is unimportant to older individuals; that it is somehow abnormal for older people to be interested in sex; that older people have no desire for intimacy; that older persons are not physically attractive and are not desirable. And of course the endemic cultural presumption is that sex is for the young and fit.

Nevertheless for many individuals sexual expression remains an important part of their quality of life. According to a 2013 Saga survey, 71 per cent of over 50s reported having a healthy sex life. Such expression is a basic human right.

Some 18 months ago Taylor-Jane Flynn and Alan Gow, professor of psychology at Heriot-Watt University in Edinburgh, carried out research on sexuality and older Scots which was published in the journal Age and Ageing. They interviewed and spoke to 133 Scottish adults aged 65 and over. Half of these lived with a spouse or partner.

What they discovered was that between 75 and 89 percent said they’d engaged in kissing, hugging and holding hands or touching. Men and women scored about the same for frequency and importance of sexual behaviours overall, and for quality of life.

Participants reporting more frequent sexual behaviour rated their social relationships as higher quality, while people who found sexual activity to be important had higher scores for psychological quality of life.

Critically they found that older adults who value sexual activity and engage in it have better social lives and psychological well-being.

So if that is a given there are clear challenges and implications for providers of care and support and for those who work in supporting older individuals.

So how important is sexual expression within the care sector?

There are obvious challenges not least with individuals with declining and reduced capacity and physical abilities in ensuring that there is a balance between protection and safety on the one hand, and enabling expression on the other. But beyond this – and there are good guides already available to help staff work with individuals who might have dementia and portray disinhibited behaviour or language – beyond that are we doing enough?
Are we able in care homes, for instance, to create places and spaces for people to be intimate and private?

Do we manage well those situations where the wishes of family members might not be the wishes of an individual resident who desires to form a new relationship?

Do we train and resource our workforce in such a way that they have confidence in dealing with what can be a challenging issue and to do so in a manner which is non-discriminatory and respectful of individual rights?

Is the regulatory framework and work of scrutiny too restrictive in this area?

Do we commission in such a way which would enable the provision of facilities to enable couples to live together or someone to initiate or form a relationship whilst in a care setting?

Do our services have sexuality policies whether in the community or in a residential location?

Do we properly understand issues of consent and capacity in the sexual relationships of the old?

Are we aware of the growing issue of sexually transmitted diseases amongst our older population, in and out of care environments?

 

All of us who support and work with those who are older need to not only start challenging the conspiracy of silence which surrounds this issue but proactively to start working to address some of the challenges I have just outlined.

 

Donald Macaskill

@DrDMacaskill

 

 

 

Carespotting

In recognition of today’s release of T2 Trainspotting, the Scottish Care National Team decided to embrace the hype with our own version of the famous monologue, “Choose Life”.

Instead of “Trainspotting”, we present to you “Carespotting”.

 

‘CARE SPOTTING’

Choose life.

 

  Choose meaningful partnership.

 Choose human rights.

  Choose difficult conversations.

  Choose inclusion. 

Choose learning.

  Choose a rewarding career.

Choose achieving things you never thought you could.

  Choose innovation.

 Choose to be brave. 

Choose to value the things that matter most, like people and relationships.

Choose living well.

 Choose dying well. 

Choose positive ageing. 

Choose improvement.

  Choose an extended family that never leaves you.  

Choose quality.

  Choose a sustainable system, that’s there for you when you’re old and your kids after that.  

 Choose where you want to be, and who you want to be with.

 Choose living to the full, right to the end.

 

Choose your future.

Choose life.

Spiritual care of people living with dementia in care homes – an opportunity to get involved

 

Spiritual care

Spiritual care is recognised as an increasingly important aspect of the care of people living with dementia. There is a growing awareness among both families and professionals that spiritual care is an essential component of holistic, person-centre care.

Spiritual Care involves developing a genuine relationship between individuals. Within this there is an acknowledgement that the clinical picture of dementia is not all that can and should be known, and that human lives are mysterious. There is more to living well than simply caring for our bodily needs. Spiritual care acknowledges the presence and importance of such things as joy, hope, meaning and purpose, as well as the reality of disease, suffering, disappointment and death.

This means that spiritual care is much broader than any one faith or religion, and is of relevance to everyone.

New research

Research, commissioned by the Life Changes Trust, is shortly to be undertaken by a consortium of four organisations (Faith in Older People, Aberdeen University, Mowat Research, and Simon Jaquet Consultancy Services Ltd) into spiritual care in care homes in Scotland. The research aims to identify the range of approaches to spiritual care practice in care homes with people living with dementia, and to explore how to best build on this in the future. It will, above all, be a positive exercise – looking for examples (large and small) of the practical ways in which spiritual care is carried out in care homes.

Getting involved

An online survey is being developed in consultation and discussion with the care home sector. The survey will be sent out to all of Scotland’s 900 care homes in February 2017. It is hoped that care home managers will be able to spare the time to complete the survey (which will be brief).

Informing good practice

The results of the survey will create an important body of evidence to inform good practice across the country. It will also help to shape a training programme (‘The Purple Bicycle Project’ delivered by the same consortium of organisations) which will be taking place in Edinburgh in 2017 and in Highland, Dundee, and Dumfries for early 2018.

Support

Key bodies in the care sector are supporting the initiative.

“The Care Inspectorate supports this important area of work, seeing spirituality as part of person centred care” (Care Inspectorate)

“Scottish Care warmly commends this work and encourages you to participate by completing the short questionnaire.  Spiritual care lies at the heart of all good care home support.” (Donald Macaskill, Chief Executive, Scottish Care)

Further information

For further information about the survey, contact Simon Jaquet (Director, Simon Jaquet Consultancy Services Ltd) at [email protected]

 

Sweating the small stuff

Well here it goes – my first ever blog! I’m Julie Hodges and I have been working with Scottish Care as a Development Officer based in Highland since July 2015.  My experiences so far have covered all ranges of emotions – great joy, sadness, and frustration. That said, the most overwhelming feeling I get and witness is one of hope and a commitment to continually improve the way we all support our older people to live the best life possible. One that is inclusive and person-centred and recognises the importance of all involved in the care home service – residents, families, and staff.

To support people to live a meaningful and fulfilling life can be difficult in trying times – but the desire to do so always seems to be there. I am delighted my role allows me to be supportive to providers (and residents/families) who are experiencing both good and more complicated situations.

Highland is further down the road with integration than other partnership areas. Because of this, I could write about numerous interesting collaborative pieces of work that are taking place on a regular basis; Highland Business Stream, the ‘Echo’ project, the 10-second pause tool, NHSH finance surgeries, NHSH & SSE contingency workshops, day-care review short term working group, complex care STWG. However, the one I have chosen to focus on is ‘Culture of Care & the impact of you’ workshops.

The workshops take place over two days and are open to anyone wishing to attend – our aim is to include residents and relatives in the future. Each group has a cross section of staff and is delivered locally were possible. The participants are introduced to some of the My Home Life tools and philosophies and reflect on their own roles in creating and supporting a positive and quality experience for anyone living, visiting, working, and dying in a care home or care setting. Workshop content is influenced by feedback from residents, staff, and relatives. The workshops are currently being delivered by the NHSH along with colleagues from all sectors who have undertaken the MHL program.

The plan is for those colleagues to present the workshops within their own services and locations to ensure a spread and share of experience and knowledge. Following on from the workshops we have created a support network for people working in care homes and care at home services. This is a supportive group of providers, managers and senior staff who are committed to sharing resources and offering help, as and when is needed, by other services and colleagues. This includes helping to identify effective paperwork/systems assistance following a care inspection or even just a ‘fresh pair of eyes’.

There is a lot to celebrate in care home life and it’s lovely to see this first hand – committed owners, thoughtful managers, hardworking knowledgeable staff, and residents who blossom with the support they have. There is also a lot of work behind the scenes – difficult negotiations and challenging conversations, and I see my role as supporting people through these in a positive way.

I’ve met some amazing people along the way and something which I notice all the time is that small things matter – the way we speak to each other, the care taken to get to know each other and to care. To care about doing a job well, whatever it is. Unlike the title of a popular book, my experience so far is that sweating the small stuff matters and many people are doing it daily. I love being part of this.

Scottish Care is recruiting a Communications & Engagement Officer

An exciting opportunity has arisen within Scottish Care for a Communications & Engagement Officer to work as part of our national team. This is a full time post (35 hours per week), based in Scottish Care’s offices in Ayr with the requirement to attend meetings and events throughout Scotland.

Scottish Care is the representative body for the largest group of health and social care sector independent providers across Scotland delivering residential care, day care, care at home and housing support.

Applicants must have experience in managing communications.

The post holder must have excellent interpersonal skills.  They must be able to communicate and clearly and positively with all the diverse range of people we work with, demonstrating ability to identify and understand a diverse range of  audience needs and to adapt style to meet them all. The post holder must be able to demonstrate an understanding of different communications methods and their value, including experience of social media and if possible visual communications.

The post holder must have excellent skills in writing, editing and proof reading copy for publication, demonstrating excellent attention to detail and contributing creative ideas.  They will be responsible for developing and facilitating communications, maintaining the Scottish Care website and databases and will lead the planning, coordination and delivery of stakeholder engagement opportunities.

This is an exciting post for someone who is creative, innovative and able to contribute to a dynamic and team.

For further information please read the Communications & Engagement Officer Job Description & Person Specification.

Please send a completed Application Form to Cath Balmer, Scottish Care, 54a Holmston Road, Ayr KA7 3BE or preferably by email to [email protected] no later than 12 noon on Friday 27 January 2017.  It will be acknowledged.

For further information about this post, please contact Becca Gatherum on [email protected] or 07584 659995 .

Initial interviews will take place on Monday 20 February 2017.

An exciting opportunity to join the Workforce Matters team

An exciting opportunity has arisen within Scottish Care for a Workforce Development Consultant to join its Workforce Matters team.

Scottish Care is funded by the Scottish Government to provide independent sector engagement around workforce development to ensure that social services employers are supported in:

  • Building their capacity for workforce development
  • Engaging with the workforce to enable their contributions to the development of policy and practice
  • Engaging with relevant advisory and working groups in order to support workforce development

Applicants must be qualified to degree level or equivalent and have significant experience of working at a senior level in health or social services or a related area.  Current knowledge of the national workforce development agenda and experience of managing the learning & development function are highly desirable.

The consultant will operate at a national strategic level; create significant collaborations for independent care sector organisations; contribute to national policy groups and consultations; source expertise and knowledge from key stakeholders; produce reports; gather and analyse evidence; and work across the sector nationally.

The role requires skilful collaboration with key partners in the Scottish Government, Scottish Social Services Council (SSSC), Care Inspectorate, NHS Education (NES), local authority, third sector and others with a requirement to attend frequent meetings across Scotland.

The contract offers a flexible, self-employed home based option and is hosted through the Scottish Care Associate model, reporting to the Scottish Care Lead Workforce Development Lead, Katharine Ross.

Please download an Information Pack and Application Form.

You can also request these directly from Cath Balmer, Office Manager, Scottish Care, 54a Holmston Road, Ayr KA7 3BE or by email from [email protected].

Completed forms should be returned to her no later than 12 noon on Friday 3rd February 2016.

To discuss the role Katharine Ross can be contacted on 07427 615880 or at [email protected].  For further information on Scottish Care’s Workforce Matters workstream please see https://www.scottishcare.org/workforce-matters/

Interviews will be held in Glasgow on Tuesday 21st February 2017.