My name is Brian Polding-Clyde, and I’m the Local Integration Lead for West Dunbartonshire and Inverclyde Health and Social Care Partnerships. I have worked in both areas for over four years and this has offered me the opportunity to work and influence across every sector of health and social care.

As a key Scottish Care partner, I was an invited to the Employee Recognition Awards for a colleague, Wendy Jack (Planning Improvement Manager, HSCP), who received a commendation under the Team Leader of the Year category. Wendy, along with Selina Ross (Chief Executive of CVS West Dunbartonshire), are instrumental members of a strategic partnership that helps to build ever closer links between the statutory, third, and independent care sectors. I was also invited to the Scottish Association of Social Workers (SASW) awards last week, where West Dunbartonshire’s HSCP’s Care at Home Team won the Special Award for ‘Best example of collaboration in an integrated setting’, recognising not only the worth of the team itself, but its impact as part of the wider integrated health and social care provision for adults and older people in area.

Wendy, Selina, and I, hosted a participation event in West Dunbartonshire which brought together Care at Home and statutory providers and commissioners. At the event, Chris McNeil, (Head of Health and Care) provided an overview of West Dunbartonshire’s present demographics and how the future may look. Chris was clear in noting the crucial role of the Independent sector in the ongoing delivery of care to the local population. Selina highlighted the role of the third sector and the ‘Link-Up’ programme, a single call telephone advice line run by well-trained local older volunteers, in helping to support people within their community. Link-Up, in addition to offering advice, also follows up on calls ensuring users are satisfied with the resolution. Lynne McKnight (Integrated Operations Manager for Care at Home) and I then gave a joint and integrated presentation on what we saw as the challenges and opportunities in delivering a Care at Home service. The room agreed that one of the key ways for us to move forward is to share resources and training. To be able to do this effectively will require the development of a Practice and Development Forum co-facilitated by the independent and statutory sectors.

In Inverclyde, we recently made a successful bid to have Care at Home and Housing Support Services become part of the Care Inspectorate’s ‘Care About Physical Activity Programme’. With partners in the third, statutory and independent sector we are developing awareness and interest in the programme, which will allow the Care Inspectorate to recruit fully committed participants.

Also in Inverclyde, we’re close to publishing ‘Come On In’, a resource developed to enhance the experience of visiting a care home. The publication has grown organically from the shared experiences of visiting family and friends, nursing staff, and reflections from Heather Edwards (Care Inspectorate), and myself.

Over the four years I have been working in West Dunbartonshire and Inverclyde, it has become apparent that the success of the work we’re involved in is dependent on closer partnership working and a commitment to joint leadership across all sectors. This will give us a better understanding of the complexity of the landscape we work in and the role we can play in enhancing the care of the people for whom we work.

What do a ticking time bomb, a silver tsunami and a population apocalypse all have in common? No, they aren’t the latest plotline from an episode of Sherlock but rather they are phrases used to describe the fact that we are living longer. They are highly negative descriptions of a reality that most of us would or should want to celebrate – we are dying older and healthier than at any time in Scottish history. So why the negativity? Why is it that so much of our cultural and political discourse about old age paints such a dark and depressing picture?

Old age is something which should be valued, but alarmist attitudes fail to recognise the benefits and potential of older age and feed into the myth that getting old is about losing something rather than gaining something new and potentially positive. Old age is seen as a challenge rather than an opportunity.

Ageism as a concept was first coined in 1969, and describes a context where there is discrimination against, contempt for, abuse, stereotyping, and avoidance of older people.

Everywhere you look there are negative stereotypes which perpetuate the myth that older people are incapable and dependent, have nothing to contribute but rather are a burden and a drain on society. We see this in many of the current debates about social care and health which count up the costs an ageing population results in but fail to recognise that over 90% of care delivered in this country comes from the hands of people who are themselves old thus saving the taxpayer countless millions.

In Scotland I am sure we would like to believe that we treat all peoples as equal, regardless of colour, creed, disability, sexual orientation and we have indeed made great strides in addressing discrimination and hate. But have we made the same progress against negative stereotyping and discrimination which is based on age? I think not – why is it that a child in receipt of residential care will have nearly double the amount of public resource allocated to their care than an older person of 90 in a care home? Why is it that countless individuals talk about not even getting the chance of an interview if they are over 60 and are seeking employment? Why is it that at the age of 65 people who are accessing social care support move from being an adult onto being an ‘older person’ and in some areas such as mental health services they tell us they suddenly find the level of their support diminishes? Do we feel it is adequate that for thousands of older people in the last few months of their life that we allocate the sum of £3.85 an hour to provide 24/7 intensive nursing care home support? That’s less than the cost of a packet of 10 cigarettes!

Many of us feel that Scotland needs to address the challenges of the silent, pervasive and systemic age discrimination which impacts on the lives of countless of our fellow citizens. We are not alone. Last September the United Nation’s Expert on Older Age, Rosa Kornfeld-Matte, stated that current international provisions are not sufficient to fully protect older people’s rights, and she called on states to consider a new convention. A few weeks later I chaired initial discussions with interested parties to explore whether Scotland needs its own Convention of the Rights of Older Persons and/or an Older Persons Commissioner as Wales and Northern Ireland have.

The creation of a convention for older people in Scotland would not add new laws and rights but would go a long way to ensure equal treatment for older citizens, not least by demanding adequate financial provision for that group of the population.

Equally an Older Person’s Commissioner would be a champion and advocate for the human rights and equal treatment of older persons. Older Scots should not be the victims of discrimination in employment, in accessing public services, in social care or in hospital treatment.

The time has come for us in Scotland to join the campaign to create a framework of rights which recognises the distinctive discriminatory experience, both at societal and personal levels, which all too many older Scots endure and experience.

We need to take off the heather-tinted glasses and face up to the reality that Scotland is as ageist a nation as many others in the world but rather than just recognise this we need to act and both a Convention and Commissioner for Older Persons would be positive steps to take. Human rights do not have a use by date – they do not diminish with age.

Dr Donald Macaskill

Chief Executive, Scottish Care

The caring side of data

I have become a victim of data or at least I have succumbed to the world of fitness data. Last year I was given a Fitbit and started using it in the autumn. I wasn’t aware of the massive advertising campaigns behind the Fitbit which is basically a cloud-based fitness-tracking device. But according to the advertisements this small device – with a little help from myself in the form of walking and sleeping more (though not together) – will enable significant life-quality changes. I will leave for others to decide the truthfullness of that statement viz-a-viz my waistline. But what I have been astonished by is the sheer amount of data that I am sent every week from this small device which sits on my left wrist everything from my average heart rate, my calories burning, my steps walked etc.

There has been an obvious shift in the data available to us about our own health in the last few years. I remember the early devices which enabled you to track your blood pressure or heart rate but what we now have is an empowerment of the individual, what some specialists have called the ‘democratisation of self-care.’ My device can now be used to adjust, alter and direct my behaviour – I have control and choice in its applicability and use. There is therefore huge potential in the realm of preventative health and self-care.

 The accumulation of statistical data indicates a shift of legitimacy and power from the medical expert to the individual.

 Many of you will be familiar with the concept of Big Data – defined as:

 extremely large data sets that may be analysed computationally to reveal patterns, trends, and associations, especially relating to human behaviour and interactions.

 But it is not the size so much as its applicability to determine trends, behaviours and patterns for whole populations that has become significant for social scientists and planners. This has especially become the case in the world of health. In some senses the data information I get and which is produced by my Fitbit gives me ‘Small Data’ –

 ‘data in a volume and format that makes it accessible, informative and actionable. … Small data connects people with timely, meaningful insights, organized and packaged – often visually – to be accessible, understandable, and actionable for everyday tasks.

So what is the place of such Data, Big or Small, in social care?

One of the issues facing those of us who work in social care is that we need to take a greater degree of ownership of the data and the debate about data – we cannot leave this to technicians and data analysts alone but must increasingly work in partnership to enable a shared determination of what data can do to enable better outcomes for individuals who use and seek to access services. Data has a tremendous potential to advance care and improve health but it is one which has to be managed and to some extent controlled.

So much of our world is being increasingly defined by an analysis of numbers, statistics and data. Are we making the right decisions from that data? Is the picture of our health and wellbeing which is painted, a true one? Just as we get suggested reading from an Amazon account or Tesco might determine what it offers us in our shopping trolley from what we have bought before – are we sufficiently aware of the streamlining of choice as a result of someone else’s analysis of our data? That may be an issue for my shopping but it becomes a critical one if data becomes a key determinant of health and social care choice.

There is therefore an important ethical debate to continually be held about the use of both Big and Small data which necessitates an awareness of the ethics behind not just the use of technology which has been much articulated but the ethics of the use of health and social care data both individually, at community levels and wider society.

Other fields are much further ahead in exploring the use of Big Data in transforming the way we do things, especially education. There is clear potential but we have to guard against a whole-scale adoption of approaches that will serve to unhelpfully alter our care landscape.

Next month sees the first ever conference to be held in Scotland which will explore some of the ethical and social science questions behind the use of data in Scottish society.  This Edinburgh Data Summit is part of DataFest17 and will hear from international thinkers. But its debates and the messages which come from the conference will doubtless shape our response to data. Those of us involved in policy development, in preventative care, in empowering choice and control over health and care; those of us working or caring in care homes and in communities need to be alive to and aware of these debates.

Donald Macaskill (Dr)

Challenging the Sex Taboo:

One of the privileges – and challenges – of doing my job – is being invited to speak at a range of events and conferences. Yesterday I was taking part in a seminar in East Dunbartonshire Health and Social Care Partnership on ‘Capacity,
Sex & Relationships.’ I was asked to reflect on the issue of older people’s sexuality in care settings.

My preparation for the seminar highlighted for me the relative dearth of literature and academic study on what is one of the most fundamental parts of what constitutes our identity and what it means to be human. There are some good pieces of work not least from Alzheimer Scotland, the Terence Higgins Trust etc. but not a lot.

This might be because there are still massive social taboos around the issue of older people and sexual expression. Its almost as if older people and sex is for our age ‘the love that dare not speak its name.’ But people are living longer and healthier lives and why should sexual expression end when we reach a particular age, almost as if our sexual selves have a use-by date attached.

But pervasive negative attitudes serve to consolidate the taboo. People consciously and unconsciously suggest that sex is unimportant to older individuals; that it is somehow abnormal for older people to be interested in sex; that older people have no desire for intimacy; that older persons are not physically attractive and are not desirable. And of course the endemic cultural presumption is that sex is for the young and fit.

Nevertheless for many individuals sexual expression remains an important part of their quality of life. According to a 2013 Saga survey, 71 per cent of over 50s reported having a healthy sex life. Such expression is a basic human right.

Some 18 months ago Taylor-Jane Flynn and Alan Gow, professor of psychology at Heriot-Watt University in Edinburgh, carried out research on sexuality and older Scots which was published in the journal Age and Ageing. They interviewed and spoke to 133 Scottish adults aged 65 and over. Half of these lived with a spouse or partner.

What they discovered was that between 75 and 89 percent said they’d engaged in kissing, hugging and holding hands or touching. Men and women scored about the same for frequency and importance of sexual behaviours overall, and for quality of life.

Participants reporting more frequent sexual behaviour rated their social relationships as higher quality, while people who found sexual activity to be important had higher scores for psychological quality of life.

Critically they found that older adults who value sexual activity and engage in it have better social lives and psychological well-being.

So if that is a given there are clear challenges and implications for providers of care and support and for those who work in supporting older individuals.

So how important is sexual expression within the care sector?

There are obvious challenges not least with individuals with declining and reduced capacity and physical abilities in ensuring that there is a balance between protection and safety on the one hand, and enabling expression on the other. But beyond this – and there are good guides already available to help staff work with individuals who might have dementia and portray disinhibited behaviour or language – beyond that are we doing enough?
Are we able in care homes, for instance, to create places and spaces for people to be intimate and private?

Do we manage well those situations where the wishes of family members might not be the wishes of an individual resident who desires to form a new relationship?

Do we train and resource our workforce in such a way that they have confidence in dealing with what can be a challenging issue and to do so in a manner which is non-discriminatory and respectful of individual rights?

Is the regulatory framework and work of scrutiny too restrictive in this area?

Do we commission in such a way which would enable the provision of facilities to enable couples to live together or someone to initiate or form a relationship whilst in a care setting?

Do our services have sexuality policies whether in the community or in a residential location?

Do we properly understand issues of consent and capacity in the sexual relationships of the old?

Are we aware of the growing issue of sexually transmitted diseases amongst our older population, in and out of care environments?

All of us who support and work with those who are older need to not only start challenging the conspiracy of silence which surrounds this issue but proactively to start working to address some of the challenges I have just outlined.

Donald Macaskill

@DrDMacaskill

In recognition of today’s release of T2 Trainspotting, the Scottish Care National Team decided to embrace the hype with our own version of the famous monologue, “Choose Life”.

Instead of “Trainspotting”, we present to you “Carespotting”.

‘CARE SPOTTING’

Choose life.

  Choose meaningful partnership.

 Choose human rights.

  Choose difficult conversations.

  Choose inclusion. 

Choose learning.

  Choose a rewarding career.

Choose achieving things you never thought you could.

  Choose innovation.

 Choose to be brave. 

Choose to value the things that matter most, like people and relationships.

Choose living well.

 Choose dying well. 

Choose positive ageing. 

Choose improvement.

  Choose an extended family that never leaves you.  

Choose quality.

  Choose a sustainable system, that’s there for you when you’re old and your kids after that.  

 Choose where you want to be, and who you want to be with.

 Choose living to the full, right to the end.

Choose your future.

Choose life.

Well here it goes – my first ever blog! I’m Julie Hodges and I have been working with Scottish Care as a Development Officer based in Highland since July 2015.  My experiences so far have covered all ranges of emotions – great joy, sadness, and frustration. That said, the most overwhelming feeling I get and witness is one of hope and a commitment to continually improve the way we all support our older people to live the best life possible. One that is inclusive and person-centred and recognises the importance of all involved in the care home service – residents, families, and staff.

To support people to live a meaningful and fulfilling life can be difficult in trying times – but the desire to do so always seems to be there. I am delighted my role allows me to be supportive to providers (and residents/families) who are experiencing both good and more complicated situations.

Highland is further down the road with integration than other partnership areas. Because of this, I could write about numerous interesting collaborative pieces of work that are taking place on a regular basis; Highland Business Stream, the ‘Echo’ project, the 10-second pause tool, NHSH finance surgeries, NHSH & SSE contingency workshops, day-care review short term working group, complex care STWG. However, the one I have chosen to focus on is ‘Culture of Care & the impact of you’ workshops.

The workshops take place over two days and are open to anyone wishing to attend – our aim is to include residents and relatives in the future. Each group has a cross section of staff and is delivered locally were possible. The participants are introduced to some of the My Home Life tools and philosophies and reflect on their own roles in creating and supporting a positive and quality experience for anyone living, visiting, working, and dying in a care home or care setting. Workshop content is influenced by feedback from residents, staff, and relatives. The workshops are currently being delivered by the NHSH along with colleagues from all sectors who have undertaken the MHL program.

The plan is for those colleagues to present the workshops within their own services and locations to ensure a spread and share of experience and knowledge. Following on from the workshops we have created a support network for people working in care homes and care at home services. This is a supportive group of providers, managers and senior staff who are committed to sharing resources and offering help, as and when is needed, by other services and colleagues. This includes helping to identify effective paperwork/systems assistance following a care inspection or even just a ‘fresh pair of eyes’.

There is a lot to celebrate in care home life and it’s lovely to see this first hand – committed owners, thoughtful managers, hardworking knowledgeable staff, and residents who blossom with the support they have. There is also a lot of work behind the scenes – difficult negotiations and challenging conversations, and I see my role as supporting people through these in a positive way.

I’ve met some amazing people along the way and something which I notice all the time is that small things matter – the way we speak to each other, the care taken to get to know each other and to care. To care about doing a job well, whatever it is. Unlike the title of a popular book, my experience so far is that sweating the small stuff matters and many people are doing it daily. I love being part of this.