‘Human rights do not have a use by date’: Scottish Care CEO calls for protection of older people’s rights

What do a ticking time bomb, a silver tsunami and a population apocalypse all have in common? No, they aren’t the latest plotline from an episode of Sherlock but rather they are phrases used to describe the fact that we are living longer. They are highly negative descriptions of a reality that most of us would or should want to celebrate – we are dying older and healthier than at any time in Scottish history. So why the negativity? Why is it that so much of our cultural and political discourse about old age paints such a dark and depressing picture?

Old age is something which should be valued, but alarmist attitudes fail to recognise the benefits and potential of older age and feed into the myth that getting old is about losing something rather than gaining something new and potentially positive. Old age is seen as a challenge rather than an opportunity.

Ageism as a concept was first coined in 1969, and describes a context where there is discrimination against, contempt for, abuse, stereotyping, and avoidance of older people.

Everywhere you look there are negative stereotypes which perpetuate the myth that older people are incapable and dependent, have nothing to contribute but rather are a burden and a drain on society. We see this in many of the current debates about social care and health which count up the costs an ageing population results in but fail to recognise that over 90% of care delivered in this country comes from the hands of people who are themselves old thus saving the taxpayer countless millions.

In Scotland I am sure we would like to believe that we treat all peoples as equal, regardless of colour, creed, disability, sexual orientation and we have indeed made great strides in addressing discrimination and hate. But have we made the same progress against negative stereotyping and discrimination which is based on age? I think not – why is it that a child in receipt of residential care will have nearly double the amount of public resource allocated to their care than an older person of 90 in a care home? Why is it that countless individuals talk about not even getting the chance of an interview if they are over 60 and are seeking employment? Why is it that at the age of 65 people who are accessing social care support move from being an adult onto being an ‘older person’ and in some areas such as mental health services they tell us they suddenly find the level of their support diminishes? Do we feel it is adequate that for thousands of older people in the last few months of their life that we allocate the sum of £3.85 an hour to provide 24/7 intensive nursing care home support? That’s less than the cost of a packet of 10 cigarettes!

Many of us feel that Scotland needs to address the challenges of the silent, pervasive and systemic age discrimination which impacts on the lives of countless of our fellow citizens. We are not alone. Last September the United Nation’s Expert on Older Age, Rosa Kornfeld-Matte, stated that current international provisions are not sufficient to fully protect older people’s rights, and she called on states to consider a new convention. A few weeks later I chaired initial discussions with interested parties to explore whether Scotland needs its own Convention of the Rights of Older Persons and/or an Older Persons Commissioner as Wales and Northern Ireland have.

The creation of a convention for older people in Scotland would not add new laws and rights but would go a long way to ensure equal treatment for older citizens, not least by demanding adequate financial provision for that group of the population.

Equally an Older Person’s Commissioner would be a champion and advocate for the human rights and equal treatment of older persons. Older Scots should not be the victims of discrimination in employment, in accessing public services, in social care or in hospital treatment.

The time has come for us in Scotland to join the campaign to create a framework of rights which recognises the distinctive discriminatory experience, both at societal and personal levels, which all too many older Scots endure and experience.

We need to take off the heather-tinted glasses and face up to the reality that Scotland is as ageist a nation as many others in the world but rather than just recognise this we need to act and both a Convention and Commissioner for Older Persons would be positive steps to take. Human rights do not have a use by date – they do not diminish with age.

 

Dr Donald Macaskill

Chief Executive, Scottish Care

 

Scottish Care Workforce Development Strategy Group

The next Scottish Care Workforce Development Strategy Group event will take place on Wednesday 3rd May.

If you would like to attend please email Katharine Ross directly
[email protected] by Friday 14 April.

We expect this to be a popular event so we would appreciate you confirming as soon as possible.

Please also let Katharine know if you have any dietary requirements.

If you would like further information please contact Katharine by email or telephone – 07427 615880.

The full programme can be found here.

Katharine Ross’s talk on realistic palliative care

The following is the text of an address Katharine Ross, Scottish Care’s National Project Lead on Workforce, gave this evening to the Scottish Parliament’s Cross Party Group on Palliative Care. The theme was ‘Realistic Medicine.’

I would like to thank the Scottish Partnership for Palliative Care for inviting me to speak this evening.

I’d like to discuss the principles and ethos behind Realistic Medicine, and how it relates to the people who delivers the greatest volume of palliative and end of life care in Scotland – front line social care support workers.

The principles of Realistic Medicine as we all know are:

time, open conversations, honesty putting the person receiving health and care at the centre of decision making and creating a personalised approach to their care.

In the context of this evening’s discussion, I’d like to explore how good we are in Scotland at putting our older citizens who are dying at the centre of decisions being made which enable a personalised approach to their death.

At the end of 2016, Scottish Care undertook a significant piece of research which sought to explore and describe the experiences of front line support workers employed in care homes and care at home organisations who were involved in the delivery of palliative and end of life care.

At four locations across the country I, along with my Scottish Care colleagues, were privileged – and often moved to tears – listening to examples of compassionate end of life care. We heard extraordinary stories of physical, practical, social, emotional and spiritual support being given to older people.

All of which was being delivered by front line support workers.

We captured stories such as the care home staff who formed a guard of honour as a resident left their home for the last time.

We heard of the importance of time and honesty. One participant said quietly:

“I want to be able to explain to somebody exactly what’s going to happen (when they die). I want to be able to stop someone being afraid”

We also heard the challenges involved in having open conversations about dying. As another support worker said:

“I don’t know what to say….it can be overwhelming. We try and say what we think is right. It just comes out.

 …You feel like you’re apologising all the time”

I suppose what we really captured was the human impact of delivering care at the end of someone’s life, and of doing this in challenging conditions on a regular basis – for multiple people.

Indeed a focus group participant was the inspiration for the title of our publication. “We are the trees that bend in the wind” is how this person described a workforce which adapts, changes and flexes to the journey of palliative and end of life care, and experiences it with the supported person.

But this phrase also relates to a workforce under sometimes intolerable pressure and strain, at risk of breaking, or at least of losing part of oneself in the process of providing end of life care.

Delivering palliative and end of life care to older people requires highly skilled, technical and practical interventions. It also involves providing emotional support, a familiar face, a hand to hold, family liaison and so many more forms of care and support that cannot be captured in any job title, not least ‘a support worker’.

In our report, Scottish Care have made 12 recommendations. Some relate to the individual who is dying – for example the development of work which embeds a human rights-based approach to the exercising of choice and control at the end of life, especially relating to the rights of older people. Dying of frailty or dementia, for example, should have a specific pathway in the same manner as those which have been successfully developed for cancer and other conditions.

Other recommendations relate to the workforce, and to the policy conditions which ultimately dictate practice.

There has to be a greater emphasis on honest & open conversations about how we pay for and commission palliative and end of life care. Can we honestly say that we adequately resource the social care sector to train its staff to an appropriate palliative level? Do we ensure sufficient time is given for a care at home support worker, to listen, to have open conversations, hold somebody’s hand, to comfort, provide love, to wipe a tear of fear away?

The answer is no.

The ethos of Realistic Medicine – time, open conversations, honesty – are critically important for all of us in this room to have, to ensure that all older people in Scotland experience a person centred death.

 

 

First of five Directed by North Merchiston films launched

Today (Monday 20 March), May: This is Your Life was launched online.  

This beautiful short film is part of a series of five short films entitled Directed by North Merchiston, made with the collaboration of the residents at North Merchiston Care Home, a Four Seasons Health Care home in Edinburgh.

Each of the residents' films - May, Charlie, Edith, John and Margaret - will be made available online on consecutive Mondays over the next 5 weeks.

Lead by BAFTA award winning filmmaker Duncan Cowles, each resident was encouraged to take control of the film-making process and decide upon the direction and what content they'd like to be included and focused on within the films.

This film project was commissioned through Luminate Creative Ageing Festival in association with Scottish Care.

Please feel free to share this information and the films more widely.   We'd also love for you to share your response to them through Twitter at @scottishcare or @DuncanCowles

For more information, please visit: duncancowles.com/directed-by-north-merchiston

May: This is Your Life

Scottish Care statement on BBC Panorama expose on Care At Home services

Scottish Care has issued a statement relating to the BBC Panorama programme and its research highlighting that many care at home providers were handing back contracts because they could not afford to deliver them.

The story is described on the BBC news website at http://www.bbc.co.uk/news/uk-39321579

“Sadly this research does not come as any surprise to us.

We know that a good number of our providers have handed back work as what they have been offered by the local authorities and Integrated Joint Boards simply could not enable them to deliver dignified, safe and adequate care. They would rather lose the work than drive standards even lower.

We are still in Scotland dominated by a political culture which tries to get the most amount of care for the cheapest price. This is a shameful way for the care of our vulnerable older people to be delivered. We have to find a better way of purchasing care than a model which is driving good organisations out of business.

A lot has been said of the funding for the Scottish Living Wage and this has indeed been welcomed, but it is on its own never going to be the answer to a critically underfunded sector. Indeed in practice this has not had the positive effect we had hoped for as 9 out of 10 of our care at home providers are struggling to recruit staff as competition with better paid sectors like hospitality and retail increases.

More pessimistically a survey which has just closed shows that 1 in 5 of our care at home providers are not confident being in business this time next year.

We cannot continue to allow this crisis to grow as the people who suffer the most will be those who have the least ability to speak out.”

Care homes in crisis – Scottish Care Press Statement

Scottish Care calls for urgent Government intervention to protect care homes

 

Each year Scottish Care as the representative body of providers of care homes for older people is involved in discussions with Cosla and representatives of the new Integrated Health and Social Care Boards (IJBs) to set the annual fees for nursing and residential care in Scotland.

This year these discussions have reached a particularly challenging position and are at the stage of virtual collapse. The offer made by Cosla and the IJBs is limited by the funds made available to them by Scottish Government and the impact of a reduced Local Government Settlement.

Scottish Care believes that it will be impossible for its membership, which includes several hundred family run care homes and many care charities, to accept what is in effect the offer of a 1% increase, without putting their homes at very real risk of closure.

Scottish Care has argued for some time that there is a chronic underfunding of the care home sector in Scotland which endangers the delivery of quality care and support to our older population. We believe that this is essentially about the dignity, value and worth of our older population. Failure to adequately fund their care needs speaks volumes about what priority we give to older people and demonstrates that inherent ageism exists in our society, particularly in our approach to social care provision.
Dr Donald Macaskill, the Chief Executive of Scottish Care stated today:

“It is with very deep regret that we have decided to make public the virtual breakdown of our discussions with Scottish Government and others. We believe that it is no longer acceptable for us to remain silent about the lack of investment which the Government is prepared to make in the care home sector in Scotland. Despite new monies being allocated in England following last week’s budget there is no indication that Scottish Government will seek to benefit social care in Scotland.”

He continued:

“In recent months providers have been faced with substantial increases in the cost of fuel, food and other commodities, averaging around 8.5%. A 1% increase will simply not enable care homes to stay in business. Together with that many nursing homes are finding it impossible to recruit nurses. We have a 1 in 4 vacancy level and to meet gaps care homes are having to pay as much as £800 a night to find a nurse.”

Dr Macaskill highlighted that:

“I recognise that we live in hard times faced as we all are with austerity and public sector cuts. But at present a nursing home is allocated only £3.85 per hour for the 24/7 nursing care of thousands of our vulnerable older people, the majority of whom are in a palliative or end of life context. For me this isn’t so much about finance but about the price we are prepared to pay for preserving the dignity of our older Scots and enabling them to exercise choice and control over their options for high quality care provision.”

 

Spiritual Care survey still open

Spiritual care of people living with dementia in care homes

– survey still open

Your opportunity to take part

We are getting a good response to the survey, and would encourage care home managers to complete it if you haven’t yet had the chance. Go to https://www.surveymonkey.co.uk/r/XYJQ2CP

New research

The research, commissioned by the Life Changes Trust, is being undertaken by a consortium of four organisations (Faith in Older People, Aberdeen University, Mowat Research, and Simon Jaquet Consultancy Services Ltd) into spiritual care in care homes in Scotland. The research aims to identify the range of approaches to spiritual care practice in care homes with people living with dementia, and to explore how to best build on this in the future. It will, above all, be a positive exercise – looking for examples (large and small) of the practical ways in which spiritual care is carried out in care homes.

Getting involved

The link to the online survey (at https://www.surveymonkey.co.uk/r/XYJQ2CP) is being sent to all of Scotland’s 900 care homes. It is hoped that care home managers will be able to spare the time to complete the survey (which should take no more than 15 minutes to complete).

The survey is supported by a number of national bodies:

“Scottish Care warmly commends this work and encourages you to participate by completing the short questionnaire.  Spiritual care lies at the heart of all good care home support.” (Donald Macaskill, Chief Executive, Scottish Care)

“The Care Inspectorate and the Scottish Social Services Council support this important area of work, seeing spirituality as part of person centred care” (Care Inspectorate, Scottish Social Services Council)

Further information

For further information about the survey, contact Simon Jaquet (Director, Simon Jaquet Consultancy Services Ltd) at [email protected]

 

 

Scottish Care issues statement on Social Care and the UK Budget

Scottish Care response to Budget debate on social care in Scotland.

Scottish Care as the national representative body of older people care home and care at home providers notes with interest the substantial allocation of resource which is to be made available to the social care sector in England following the Chancellor’s announcements in the Spring Budget Statement.

In Scotland we face similar challenges within social care. The sustainability of both care homes and care at home services is today under increasing threat and challenge. Running costs for most organisations have increased significantly in the last few months. People are living longer, demand for social care is increasing all the time and the needs of those going into care are becoming greater.

Whilst recognising the investment in social care provision over the last two years we are calling upon the Scottish Government to make clear how it proposes to invest its share of the Barnett Formula allocation to support a sustainable and viable social care sector in Scotland. Together with the Government we want to work to ensure that the provision of care is sufficiently funded to ensure the rights and dignity of our older citizens are upheld. The adequate funding of social care is not a luxury but a fundamental component of what creates a just and fair Scotland.

 

 

Book now for Care at Home & Housing Support Conference 2017

Yes it’s that time of year again!

Scottish Care’s annual Care at Home and Housing Support Conference & Exhibition will take place in the Glasgow Marriott, Argyle Street, Glasgow on Friday 12th May 2017.

This year’s conference is entitled “Bringing Home Care: Transforming Support in the Community”

#bringhomecare

Click here to view the draft conference programme.

  You will notice from the conference programme that there will be insight sessions before and after lunch to enable delegates to attend two different sessions.  When booking, you will be asked to choose the two sessions you wish to attend on the day.

With the care at home reform process ongoing and an ever changing landscape of health and social care, the conference is a crucial opportunity for providers, partners and stakeholders to hear about how the reform work is progressing and what effect it will have on the sector.

Scottish Care will also be launching a new report on the care at home and housing support sector at this conference.

You can book your place to attend conference at: 
https://cahandhssconference2017.eventbrite.co.uk

You can only pay by card for online bookings.  Alternatively you can contact: [email protected] for a booking form.  Please note: no tickets will be issued until payment is received.

We look forward to seeing you on the day.

If you are interested in booking an exhibition stand at the conference, please contact [email protected]

Extended till 17th March – Scottish Care Annual Care at Home and Housing Support Awards

Extended till 17th March – Only a few days left!!!

 

Scottish Care’s Annual Care at Home and Housing Support Awards are an important opportunity to recognise the tremendous work undertaken by organisations and staff who work in care at home and housing support services. This is a chance to highlight the skills, dedication and abilities of the many talented individuals and organisations who are dedicated to making life better for people and in supporting them achieve their fullest potential.

Entries are now open for the 2017 Awards, which will take place on Friday 12 May.

This is your chance whether as an organisation, individual or family member to tell us and others about the work you value.  We want to acknowledge what can be achieved when people work together to improve the lives of those who access care and support services in their own homes.  Awards are open to Scottish Care member organisations, their staff and clients but anyone can submit a nomination.

There are ten categories to enter in 2017 and we can’t wait to hear about your projects and partnerships.

  1. Care at Home Services Carer(s) of the Year – Individual or Team
  2. Housing Support Services Carer(s) of the Year – Individual or Team
  3. Management & Leadership Award – Individual
  4. Training & Staff Development Award – Individual or Company
  5. Care Services Coordinator / Administrator of the Year – Individual
  6. Innovative Practice Award – Individual or Team
  7. Client Achievement Award – Individual or Team
  8. Housing Support Provider of the Year – Company
  9. Care at Home Provider of the Year – Company
  10. Significant Contribution Award – Individual

Please make sure you have read the Awards Guidelines before entering.

Nominations can be submitted online at https://www.surveymonkey.co.uk/r/homecare2017.  If you require a hard copy of the nomination form, this can be downloaded here.

The deadline for entries is Friday 10 March 2017