Partners for Integration Event Recording – 13 October

Huge thanks to everyone who joined us on Thursday 13 October for the Partners for Integration event. This event focused on ‘future proofing ethical and collaborative commissioning and procurement by sharing areas of best practice.’

The recording and presentation slides are now available to view below.

The valuing of social care.

Yesterday evening along with over 500 guests I attended the Welsh Care Awards in the City Hall, Cardiff. I was in Cardiff because that was where the Five Nations Care Forum had been meeting for a day. This is a Forum which brings together care representatives’ bodies from the United Kingdom and Ireland twice a year to share issues of mutual concern and priority. Clearly the cost-of-living crisis, the energy and fuel crisis, and the huge workforce shortage were issues which all the five nations shared. Because I was in Cardiff I was invited to present an Award at the Welsh Care Home Awards. It was a real honour to do so.

The evening was amazing not least because it was the first time that the Awards had been held since the trauma faced by the care sector in Wales during the pandemic. It was so good to hear such amazing stories of professionalism, integrity and sacrifice; to hear first-hand from the First Minister of Wales, Mark Drakeford, of the value and priority placed upon social care by the Welsh Government, and to be part of such an emotional evening graced not least by amazing musical contributions from Sir Bryn Terfel and Wynne Davies, the event’s compere.

Throughout the evening as I sat there listening to stories of great professionalism, about nurses and carers, about domestic and catering staff, about managers and supervisors, one word kept being used time and time again. That word ‘value’ – that these were people who we needed to value as an intrinsic part of society in Wales and that they deserved all the value that was being shown to them during the event and by the Welsh Government and wider Welsh society.

The dictionary describes ‘value’ as the regard that something is held to deserve, its importance and worth. It also states that value has a sense of moral or ethical character. Indeed, the root of the word in Old French has connotations of strength and worthiness.

I reflected on whether we really value social care and the workforce that represents that world? Or is our sense of societal value transitory and illusory. I reflected on whether one of the reasons so many feel a sense of lack of value is that in general terms if society is being honest, it does not value care in essence. Three brief thoughts.

I have heard from colleagues across the UK this week about the sense that social care services and supports, whether delivered in a care home or in a community setting through homecare and supported housing, is most certainly not valued. Otherwise, it is stated we would not be faced with the degree of ‘crisis’ that clearly is the current reality. People talked in their own part of the United Kingdom about social care being seen as the ‘Cinderella’ service, as the after-thought, the last to be considered when budgets are allocated and priorities are determined. There was also a sad consistency in that there was a feeling that social care continually was only seen of value in terms of what it could do for the NHS, to alleviate its pressures and strains, not least in terms of delayed discharge. Yet at the same time there is clearly a failure across the UK despite the policy reality and political rhetoric to both work as an integrated health and care system and to treat each part with the respect, professionalism and regard it is due. It is very much an acute NHS wagging the political dog which barks at social care – and then wonders why the system is not working or responding. As so many people in the world of social care know only too well – if we are every going to solve the crisis of a failing health system it is going to have to involve getting social care providers and organisations around the table – not continually treating them as a problem or issue to be sorted rather than as the solution and answer. The prioritisation of the NHS in the whole system shows little valuing of social care or those who work in that sector.

There is a second way in which this week I was reminded of value and that is the way in which a government or political leadership bestows priority and value upon one economic sector compared to another. It was a delight to hear from the Welsh Government Deputy Minister of the way in which social care in Wales, the role of providers and services, was seen as a core part of their foundation economy model. That is based on work of some age now which argued that social care rather than being seen as a drain and deficit, as a cost and charge, should rather be seen through the lens of contribution and capacity, as an enabler of community and a fosterer of citizenship. The very fact that services and supports exist do not just enable individuals to be personally supported but free family and others to remain economically active and contributive. The latter observation is so critical in a society and at a time which needs all those fit and able to work to be economically contributive and which has a population deficit. Social care is a driver for innovation and entrepreneurship. And yes, I have before lamented about the lack of priority in the Scottish Government’s fiscal strategies in relation to social care – in fact barely a mention and that which does exist sees the sector as a cost not as a driver for economic innovation and contribution. If we were truly to value social care, we would start to recognise the real economic benefit to be achieved by proper investment and prioritisation, not just for those directly impacted but by the wider community. This is perhaps especially the case when we think of community benefit – so many care homes for instance not only employ those who live in the local community, but they buy their food, source their support in terms of maintenance and repair, utilise community assets such as leisure and artists, and so much more. Care providers are a massive contributor to community wealth building, to community benefit and to community cohesion and maintenance. Yet this is so often ignored or overlooked.

Lastly, and perhaps the most visible issue last night was the extent to which society is paying but lip service to the contribution and role of social c are workers in our communities. Yes of course we clapped for carers (albeit begrudgingly) but can we honestly hand on heart say that as individuals and as a collective we consider the contribution of a care to be just as important and valid as that of a teacher, a train driver, a banker or a IT analyst? Because in truth the way we answer that question will evidence what we consider to be the essential requirements of a community built on valuing contribution. Some might say it is false to try to create a hierarchy or equivalence – and in an utopian ideal reality I would agree – but the fact that we pay what we pay, resource allocate what we allocate, fail to meet unmet need for tens of thousands who require care and support, are seeing care organisations going to the wall and collapsing every day – those facts speak to a valuing of social care which is wholly absent and negative. Part of the way you value anyone, or any sector is the extent to which you reward and remunerate those who work in that sector – I have said it before and repeat here that there is a perverse upside-downness of societal value and priority when social care, especially the care of adults and older people, comes into play.

Valuing in applause and sentiment, in word and rhetoric is easy, valuing in reality and reward, in recognition and regard is so much harder.

The American poet Christine Kysely perhaps sums it up well:

What is a person’s value?

What is their worth?

Can it be based solely

On what is found in their empty purse?

 

Can that one missing emptiness…

Take away a person’s pride?

Can it belittle,

The entire worth of their life?

 

Is there some value,

In the light in their eyes?

Is there some value

for the past loves of their life?

 

Is there some value

In the all the books that they’ve read?

The knowledge imparted

The words that they’ve said?

 

Do they get credit

For the beauty they’ve seen,

Painter of paintings,

Dreamer of dreams,

Taker of photographs

Creator of life,

Mother of children,

Lover of life.

 

Lover of wisdom, of knowledge, of men,

Friend to all people, both dark-skinned and light,

Lover of humans,

Meets all with delight.

Lover of all things,

Both known and unseen,

Champion of causes, of persons, ideals,

Believes in the future, values every meal.

 

Is there some value,

To someone who really loves life,

Whose laughter fills each and every day,

In spite of their ongoing strife?

 

To someone who looks to the heavens,

Always amazed,

Someone who has pondered the moon,

And watched it go through its phase.

 

To someone who has held the earth in their hands,

Who has felt the sun on their face,

Who is raising their own children,

Who puts on a brave face.

 

What is the value,

Of one who has financially hit a wall,

Who has often sat here and pondered,

And tried to make sense of it all.

 

What is my Value?

What is my Worth?

Will I be valued solely,

By what is contained in my purse?

 

(c) Copyright 2010 by Christine A Kysely,

 

Donald Macaskill

The right to bereavement support is a human right.

I’ve spent a lot of time in the past week listening, talking, and reflecting on issues of death, dying and bereavement. The primary reason for this is that the UK Commission on Bereavement launched its final report on Tuesday in Westminster and prior to this I chaired a session at the SNP conference on the topic whilst on Thursday a virtual event brought a huge number of people together to take part in Scotland’s Bereavement Summit and participate in great discussions and sharing.

Regular readers of this blog will know that I have over time written a lot about bereavement and have been very honoured to have served as a Scottish Commissioner on the UK Commission.

The report which was launched on Tuesday is one of the most comprehensive explorations of the nature of bereavement within modern British society not least in the light of the Covid pandemic. It is rooted in the lived experience of many people not least those who gave their time and inspirational insights as members of the Lived Experience Advisory Forum which worked alongside the commissioners. Some of those voices were present at the launch and their shared stories of loss moved and motivated the audience.

The Commission has made numerous recommendations rooted in a robust academic and sociological analysis of what its research had discovered. It strongly articulates the need for society to see bereavement support as a public health issue, avoids pathologising grief but yet articulates the pain and distress experienced by those whom we are failing as a society. I would encourage you to spend some time reading its findings. It is entitled ‘Bereavement is everyone’s business’ which very much sums up its focus. For today I want to reflect on one of its arguments which is of particular personal importance.

The Commission report is the first one of such depth and robustness, both academically and in terms of lived experience, to declare that the right to access adequate and appropriate bereavement support should be recognised as a human right. Again, I have reflected elsewhere why this could become the case legally not least as Scotland seeks to incorporate a right to health within a developing new human rights act. There is I believe a very real opportunity for Scotland to take a pioneering lead here both legislatively and in terms of empowering people’s ability to access bereavement support. I hope it won’t be missed.

But I want to respond to some comment as to what difference such a human right might make in practice.

Human rights are first and foremost about human relationship – our modern articulation of them is not least because of the traumas of the past when difference and distinction became the vehicle for hatred and holocaust. Human rights are there for the best and worst moments of our relating to one another – they are for the ordinary and extraordinary realities of living and loving. There is nothing which is more fused with the relational than the moments of our dying and the experiences of loss and emptiness, of connection and togetherness, of isolation and rejection, of tear and laughter, that encompasses the grief journey of so many. Yet the Commission’s report indicates that for 40% of those who sought support in their grieving that that support was not there for them; it notes that nearly 50% of children and young people did not find adequate support in their place of education, whether school, college or university; it further evidences that a quarter of those who sought support from family did not find solace. So, whether through formal or informal mechanisms we are clearly coming up short in offering and receiving the bereavement support we need to grieve in a manner which attends to our humanity. That may have a lot to do with societal stigma and a contemporary cultural divorce from death and dying, but it clearly is something we must address. A human right to bereavement support based on the right to be healthy and with a holistic concept of wellbeing, would help to root priority in declaring that our bereavement health is as intrinsic to our humanity as any other aspect of health and citizenship.

Such an elevation of priority and value would assist in the ongoing and at times shocking stigmatisation of death and bereavement. The report has shone a light on a shaming reality that so many on the grounds of poverty or knowledge, of race or ethnicity, or age and disability, find it much harder to access the bereavement support they need. The compounding of heartache because of cultural taboos which silence support and comment simply must be challenged. A human right to bereavement support would help to elevate the needs of all to ensure equality of access, fairness in provision and non-discrimination in delivery. We cannot continue to tolerate provision which treats some less favourably and which for many results in not moments or months of psychological hurt but in years of aching dislocation.

It is also important that people recognise that regardless of their circumstance or fortune that when they need support to deal with the loss of someone important to them that such support is there as of a right and most importantly that they can claim that right. The realisation of a human right to bereavement support will take time to reach fulfilment and included in that journey will be increased awareness of what is available, improved access which is appropriate, and an urgently needed societal discourse and debate on the nature of death, dying and bereavement. The silence of death and grief avoidance we so often witness in contemporary culture ill serves those who when faced with death especially sudden and tragic loss have no language with which to speak its pain, no resource and knowledge to understand what is happening, and no-one to turn to as they walk their journey.

Lastly and no less important is that articulating bereavement support as a human right necessitates the requirement to monitor and evaluate progress on the part of public and governmental bodies. Human rights do not exist in a vacuum – there are mechanisms (albeit sometimes inadequate) to ensure that State actors and governments are held to account for policies and behaviours which either act against the fulfilment of a right or progressively help to realise that human right. The recommendations within the UK Commission report are the baseline for the creation of a community and society which roots the human right to bereavement support as a marker of our citizenship. Of necessity this also includes the requirement to identify adequate resource, budget allocation and fiscal priority to ensure that the human right to bereavement support is achieved. This amongst many other reasons is why the UK Commission is calling for at least 0.79 pence to be spent per annum on each bereaved person. Rights are only achievable if appropriate resource is allocated not in the absence of fiscal and budgetary allocation. If we are to change both the nature of and access to bereavement support, to professionalise the response of all including employers and the workforce across so many sectors, then the bereavement support sector can no longer be holding out an annual begging bowl to receive the scraps of budget allocation like some Dickensian orphan but must be seen as a priority sector.

Human rights point to a better future and give agency and purpose to the journey to realise our individual and collective responsibility. This is not just for paid up politicians and policy makers – as the title of the report states – it’s everyone’s business.

The excellent Commission report is a starting point – but change only happens when words come off the page, statutes come down from the shelf, people stand in solidarity and say enough is enough – it is time to change and time to act. The thousands who are bereaved each year and especially those who are struggling with their grief deserve a society which listens to them, hears their pain, responds to their needs and offers adequacy of compassion, care and support. In no little way that is why bereavement support should be seen as an inalienable human right, as important to us as the right to physical or psychological health and wellbeing. The work for such change starts now.

Donald Macaskill

Finalists announced for Care Home Awards 2022

We are delighted to announce the finalists in the 2022 Care Home Awards.

We received a record number of entries this year at an exceptionally high standard, making it even more difficult for our judges to shortlist! Huge thanks to everyone who entered and congratulations to our finalists!

Winners will be announced at an evening Awards Ceremony, hosted by Pop Idol Winner Michelle McManus and Scottish Care CEO, Dr Donald Macaskill. This will take place on the evening of Friday 18 November at the Hilton Hotel, 1 William Street, Glasgow.  If you are interested in booking an awards table, please contact [email protected].

#careawards22 #celebratecare

‘Don’t just say hello.’: sharing our mental health. – a short blog

I have written before on many occasions about mental health and older people, about the struggles of those who I have known to navigate the no-man’s land between support as an adult and the gaps in provision they meet when they suddenly become ‘old’; about how an understandable emphasis upon child and adolescent support can sometimes make those older adults with life enduring mental health conditions feel that their lack of priority is because of age, contribution and value.

There are many challenges facing older people and in a time of societal uncertainty, cost of living anxiety and a general economic downturn- it is especially hard for those who have mental health challenges to keep going and to navigate a world of uncertainty and confusion.

Monday 10th October is World Mental Health Day, set by the World Federation for Mental Health, and it will as it always does provide people with an opportunity to focus on just how significant mental health is for us all. In the shadows of a global pandemic, it can sometimes feel that an emphasis on physiological health has overtaken the importance of holding in balance our focus on both the psychological, emotional and the physical. That’s certainly what John was reflecting to me recently in some of the communication I have been having with him.

John is in his 80s and he has been a user of mental health services for certainly most of his adult life. Recently he has been experiencing some very dark times and it has been hard for those who love him and who attempt to support him to get him on what he would himself describe as ‘an even keel’ rather than drowning in the torrents of his moods and moments. John said to me that the last few months have been very worrying indeed; what with Ukraine, talk of nuclear weapons, the worry about not having money, the fear of the cold, the fact that so many new faces are coming to support him because staff are leaving his homecare organisation – all of it is creating a whirring headache for John and in his words, ‘’It’s stripping hope off my bones.” But what he worries about and says so much is that he believes he needs to stop talking about how he is feeling; that he needs to pretend to be better and healthier than he is.

Sitting as I do on so many talking groups and committees where mental health comes up ever more frequently, I try to hold on to the stories and exchanges I have with people like John. Because it is easy to become desensitised to the very real fear, the cold fear, which some feel with their mental ill health. It is easy to forget that rather than becoming better or more settled, or attuned to managing episodes of mental ill health, that so many as they get older feel drained and simply exhausted and feel they cannot imagine growing older with such feelings and experiences dominating their living and loving. It is easy to forget that the stigma of mental health is still out there for so many folks maybe especially perhaps for an older generation. It is easy to forget that there are too many people who sit in silent pain and in rooms of lonely, abandoned hope because of a conviction that no one wants to hear their story, feel their pain or understand their distress.

So those of us who are able to listen and hear what is said, and see what is shown, and take on board what is felt, on this and every day we need to make sure that in all the noise of our communities that people like John can still feel their words are worthy of being uttered and that a plea for help will not be ignored. If we do that individually and collectively then perhaps, we will make progress as a community of the fragile.

The Scottish poet and biographer J.B.Pick puts this all beautifully in ‘Old Age Blues.’

‘I don’t know what I used to know.

I don’t say that it isn’t so,

I’ve just forgotten. That’s a blow.

When you know nothing, then you go.

 

The world keeps changing, things must grow;

You spend life learning, but it’s slow;

Perhaps my status isn’t quo.

I don’t know what I used to know.

 

Well, I must watch, not let it show,

Greet the morning, say ‘hello’;

When you know nothing, then you go.

I don’t know what I used to know.’

 

From : https://www.scottishpoetrylibrary.org.uk/poem/old-age-blues/

Donald Macaskill

 

 

 

The deception of youth: reflections for the International Day of Older Persons.

This past week I have had the privilege of spending time with some of the most creative global thinkers and leaders in the space of aged care and older people’s rights by attending both European and Global Ageing meetings in Vienna. It has been invigorating to spend time sharing issues of mutual interest and concern, and recognising the solidarity of shared action, resolve and priority.  One of the best contributions in the events was from my colleague Katie Smith Sloan who is the Director of the Global Ageing Network as well as being the CEO of Leading Age, the foremost older people’s care and support membership body in the United States. Katie delivered a tremendous keynote speech with much insight, but one observation which struck home to me was when she noted that one of the reasons that we are witnessing such an increase in age discrimination across the world is that on the whole people, whether policy makers, politicians, or ordinary citizen, we are uncomfortable with recognising the reality that the world’s population is ageing.

That fear of ageing and the associated reluctance to recognise the reality of discrimination against older people, lies at the heart of the International Day of Older Persons which we celebrate and recognise today, the 1st of October. This year the United Nations is marking the day by encouraging us to recognise the amazingly resilient contribution of older women.

They state in recognition of the way in which Covid 19 has exacerbated older person discrimination that:

“While older women continue to meaningfully contribute to their political, civil, economic, social and cultural lives; their contributions and experiences remain largely invisible and disregarded, limited by gendered disadvantages accumulated throughout the life course. The intersection between discrimination based on age and gender compounds new and existing inequalities, including negative stereotypes that combine ageism and sexism…

Recognizing the vital contributions of older women and promoting the inclusion of their voices, perspectives and needs are critical to creating meaningful policies to enhance a holistic response to local, national, and global challenges and catastrophes, UNIDOP 2022 is a call to action and opportunity aimed to embrace the voices of older women and showcase their resilience and contributions in society, while promoting policy dialogues to enhance the protection of older persons human rights and recognize their contributions to sustainable development.”

That call and encouragement should have a particular resonance for the care sector not only because the majority of people who receive social care supports are older women but because the majority of those who deliver that care and support, whether paid or unpaid, are themselves women and many of them living with the challenges of older age.

As the United Nations states the population of the world is ageing and doing so at a faster and increasing rate.

“Over the next three decades, the number of older persons worldwide is projected to more than double, reaching more than 1.5 billion persons in 2050. All regions will see an increase in the size of the older population between 2019 and 2050… the fastest increase is projected to take place in the least developed countries, where the number of persons aged 65 or over could rise from 37 million in 2019 to 120 million in 2050 (225%).”

In Scotland our population is also ageing.

“Those aged 65 and older grow from being 20 per cent of the population in 2022 to 32 per cent of the population in 2072. 9. These changes mean Scotland’s population is projected to be 7.6 years older on average in 2072 than in 2022, in comparison the UK population is set to be 6.1 years older over the same time period.” Trends-in-Scotlands-population-and-effects-on-the-economy-and-income-tax-August-2022.pdf (fiscalcommission.scot)

So, is it true that we are frightened of growing old both as individuals and as a society? Is that why we fear to be honest with the truth because we have swallowed the quest of seeking the illusive fountain of youthfulness? Indeed, most societies have in literature and art, in design and fashion portrayed the allure of youthfulness, equating beauty and creativity, vibrancy and life with youthfulness. It is maybe not surprising therefore that when older age is reflected upon it is with a language highlighting decline and deficit, diminishment, and decay. It is about what can no longer be done, the limitations of body and mind, the past is viewed with a yearnsomness and desire which is lost forever.

I do not think we will ever address all the systemic and political lack of priority, value and status around social care which I often reflect upon, without alongside it challenging the pervasive ageism that afflicts our societies, not just in Scotland but in so many countries.  We will never meet the challenge of support, care and health care without spinning on its axis our age presumption and bigotry. This will not simply be achieved by the occasional fashion magazine employing older age models, or advertising being more reflective of its consumers, or ageist language being more frequently challenged in daily discourse – all of which are important – ageism requires a societal shifting of the sands. We need in the present moment to witness the same degree of popular and civic campaigning which in the 1960s and 70s led to us addressing gender and sex-based discrimination. We need to reach a stage where ageist behaviours, assumptions and stereotypes are as unacceptable as those against an individual’s race or ethnicity or any individual characteristic. But we also need to become more comfortable with age, revolutionise our thinking with a dose of positivity and a celebration of the benefits of older age as well as some of the limitations. We have a long way to go before we can truly say we are an age positive society, one that not only gets up and offers a seat to those who are old but lets that population take control of the destination. It will perhaps come when people stop asking what can be achieved in older age and reflect rather on the creativity of a poet writing her best work, an artist painting in a new style, a mother reconciled to a daughter, a father holding a hard conversation for the first time in his life, someone being able to be honest with themselves about their identity – all actions and experiences I have witnessed in the lives of those in their nineties. Positive change can happen until the last breaths of life.

The late Scottish poet Elma Mitchell with her usual directness describes the ageing of a woman’s body but tantalisingly wonders does older age lie to youth or is youthfulness the delusion of deceit? A revolution of ageist presumption is required by the whole of society so that we learn to see beyond the chronology of years to recognise the value of individuality without condition and without the label of age to limit insight.

Good Old Days

My neck, where love ran

Just under the skin

Is now an old rickety ladder to the brain.

My breasts, a full delight

For child and man,

The setting

To carry rival jewels,

Dangle now untidy,

Unharvested, over-ripe.

The wishbone of my legs

Has changed their wishes’ destination,

Shin repeats to shin,

Welcome, death, you may come in.

I should be cheerless

As a crow in winter fields

When the light is going

But up here, at the top of the spine, behind the eyes,

Curtained a little, but not blind,

Sits a young and laughing mind

Wondering which part of me is telling lies.

Elma Mitchell

from The Human Cage (Peterloo Poets, 1979)

Good Old Days by Elma Mitchell – Scottish Poetry Library

A Scotland that Cares – 29 September

  Public urged to back campaign for a landmark “National Outcome” to value and invest in care and carers in Scotland

  • Cost-of-living crisis is deepening long-standing pressures on those who provide care

  • Care and carers currently “invisible” within Scotland’s existing National Outcomes

  • Scottish Government preparing to review Outcomes for the first time in 5 years

  • Campaign for a new National Outcome on care backed by more than 45 organisations

A unique group of more than 45 organisations is urging people across Scotland – and particularly those with direct experience of any form of care or caring – to back a major campaign for a new “National Outcome” on care.

The “A Scotland that cares” campaign says those who experience and provide care, including paid care workers, unpaid carers, and parents, have been undervalued for too long, with many facing deep financial and personal pressures.

The organisations say the situation was significantly exacerbated by the Covid-19 pandemic and is now being made even worse by the cost-of-living crisis. Frontline and support organisations report that rising energy, food and fuel bills are heaping extra pressures on the already stretched budgets of carers, care workers and social care services.

While the campaign says action is needed to alleviate immediate financial pressures, it is specifically calling for the Scottish Government to create a new commitment – known as a “National Outcome” – to help tackle the long-standing undervaluation of care. It comes as the Scottish Government prepares to launch its first review of Scotland’s existing 11 National Outcomes – the goals which it says describe ‘the kind of Scotland it wants to create’ – for five years.

Sara Cowan, from the Scottish Women’s Budget Group, said: “Politicians have repeatedly praised those who provide care in Scotland, but they must now embed an ambitious and measurable National Outcome on care to help drive transformative policy and spending action – and ensure progress is properly tracked.

“Care is the backbone of our society, but it is badly under-valued and suffers from chronic under-investment. This is impacting all of us, but women face the deepest consequences because they provide most paid and unpaid care.

“Alongside immediate action to alleviate the cost-of-living crisis, we must end the invisibility of care and carers within Scotland’s National Outcomes so that investment in care is placed at the very heart of policy and spending priorities.”

Created by Oxfam Scotland, Carers Scotland, the Scottish Women’s Budget Group, Scottish Care and One Parent Families Scotland, the joint campaign is now backed by over 45 organisations – including Carnegie UK, IPPR Scotland, the Wellbeing Economy Alliance Scotland, the Minority Ethnic Carers of Older People Project, and Barnardo’s Scotland. They say the lack of a dedicated National Outcome on care ignores the foundational importance of care to the wellbeing of individuals, households, and Scotland as a whole and leaves all forms of care undervalued – whether it is on a paid or unpaid basis, for children or adults, or for people with or without additional support needs.

The people of Scotland – and particularly those with personal experience of any form of care – are now being asked to send a personalised letter to the First Minister and the other party leaders using a dedicated website – www.ascotlandthatcares.org/ – set up to make the process straightforward.

Fiona Collie, Head of Policy and Public Affairs at Carers Scotland, said: “For too long, all forms of care have been undervalued in Scotland leaving too many people who provide care struggling without the financial and practical support they need. The pandemic and the cost-of-living crisis have only made matters even worse.

“We urgently need to inject additional funds into our care services, but only by fully valuing and investing in those experiencing care, and all those providing it, can Scotland build resilience to current and future shocks. We’re urging the people of Scotland, but particularly those who live with the day-to-day realities of care, to join us in calling for Scotland’s politicians to set this new National Outcome, and then to work quickly to deliver it.” 

The campaign recognises that a range of initiatives could improve how we value and invest in care and carers in Scotland – such as a new social security entitlement for unpaid carers, additional investment in a reformed system of social care, and steps to better support low-income parents via the upcoming increase in the Scottish Child Payment.

However, it says progress is too slow and too shallow and those who rely on, or provide care are paying the price, including challenges in accessing sufficient levels of care, as well as poor working conditions, insufficient social security entitlements, and a lack of adequate respite for those who provide care. Caring is also deeply linked with poverty.

Jamie Livingstone, Head of Oxfam Scotland, said: “It’s clearer than ever that the wellbeing of our entire society depends on care but, right now, a failure to sufficiently value and invest in this care is a key barrier to ending poverty.

“The cost-of-living crisis is simply multiplying the pressures long faced by those who provide care and, while some initiatives underway in Scotland have the potential to create positive change, the invisibility of care within Scotland’s existing National Outcomes is unacceptable and must now end. The Scottish Government, with cross-party support, must use the upcoming review process to show they are fully committed to building a Scotland that cares.”

Academics at the University of the West of Scotland have developed a blueprint for a new National Outcome on care, and have identified seven ‘Beacon’ National Indicators which they say should be used to monitor progress, in addition to capturing people’s lived experience of care. They say the introduction of a dedicated National Outcome on care would make Scotland one the first countries in the world to make such an explicit commitment.

Alyson Vale, Business and Operations Director from Abbotsford Care in Fife, added: “People deserve the opportunity to receive high quality care in their local area. Scotland has a dedicated and passionate caring workforce, but we need investment from government so that we can deliver the changes needed, both now and for creating a more sustainable care system to cater for the future care needs of our nation. 

“A dedicated National Outcome on care would show that our government is committed to valuing care and those who provide care as essential to our society.”

Keeping it real: the essence of social care.

The following blog was the substance of an address given to the Highland Senior Citizens Network in Inverness on the 14th September.

I am just going to say a few words and will be using the title of your event Keeping it Real as the basis of some thoughts about what I think are the challenges but also the opportunities for aged care today and tomorrow.

People who know me well know that I am somewhat obsessed with dictionaries and the meaning of words or phrases – and so I looked up what ‘Keeping it real’ meant.

The phrase is described as being authentic, true to yourself. But what does it mean to be authentic and true to yourself?  Those were some of the thoughts I had a few weeks ago on a visit to Skye. As some of you might know my family roots are there and I was back staying with family when I discovered that the Highland Council Archive Centre in Portree – was in the final days of an exhibition which centred on the sometimes-violent disputes between crofters and their landlords in the late 19th Century. It was a great wee exhibition which not only contained the local Court Register all the way back to the 1830s but also the relevant copy of the Napier Commission report which eventually brought about a settlement to what had been the Clearances. I had not physically seen either before – and so -partly checking to see how many distant relatives had fallen foul of the law (and there were a few) I rifled through both documents.

I discovered that a direct descendant gave one of the most moving testimonies to the Napier Commission. In it he described the injustice and maltreatment at the hands of those who sought control over him and his land. He spoke for the local people and was later described as an ‘agitator.’ As I read his moving testimony, I could almost hear the cadence and rhythm of his Gaelic voice – especially when he said that ‘It would be better for Glendale (the place) that Hamara (his township) would be a lake of water than in its present condition.’

Being authentic for him (and indeed for so many who gave emotional evidence to Napier) was about being honest and true, not fake or false, not influenced by the pressure of factor or landlords, but to speak despite threat with courage and conviction. I can only admire that sense of keeping it real. It was a speaking of truth to power. It was about being true to the innate values that were those of his people and place.

And today I feel as we gather and spend time thinking about the challenges facing social care delivery in the Highlands – I think we have also to remain true, to keep being authentic to what it is which is the essence of social care, what it is which lies at the heart of what we are as a community.

No one can deny that there are enormous pressures facing us in terms of the delivery of social care in an area like the Highlands. To some extent it has always been thus. But the last few years and months have stretched the fabric of care to almost the point of breaking. Covid was hard, emotional, and traumatic, unsettling and fracturing of relationships and trust. The energy crisis and the cost-of-living crisis we are currently living though has been for so many smaller providers of social care the last straw, the thing that has broken them. I hope the measures outlined by Westminster will properly address the gaps between funding need and resource availability. But we are also faced with ongoing challenges of how we respond to the workforce pressures that we know only too well, not helped by Brexit and backward migration policies, for it is a real struggle to recruit and retain the gifted women and men who are the lifeblood of what we do in an economy where the draws of hospitality, tourism and retail are so strong.

Someone asked me recently do I not get depressed or downtrodden by the realities of what I see and hear – and yes it would be a lie to say it is not challenging – but people like me have to be positive – because current challenge can and will be the platform for a response which will take us to a future which might be different from the one we envisaged but which will be of equal worth as long as we keep it real.

To deny the realities of financial restriction, of workforce, and geographical pressures would be dangerously naïve. But to allow them to be the end statement, to be the full stop of our dialogue, would be to give in and give up, and I do not recognise that as a characteristic of Highland authenticity and response.

Four things mark social care authenticity for me:

Firstly, for me being authentic about social care – keeping it real – is making sure we do not throw the baby out with the bath water. At times of fiscal and operational challenge it could and would be so easy to stop being adventurous and trying the new – to be innovative and to invest in the ingenuity of change and difference. The role of technology for instance has so much to offer social care provision in the Highlands – so this is the time to invest and be creative in how we use technology to help someone remain independent for as long as possible in their own place and to maintain their independence. How do we use technology for instance to give more authority and autonomy to frontline care workers, so that we respect their professionalism and skills? We may need to change our regulatory and oversight systems to enable more risk taking, less paperwork and audit for the sake of audit, and to start trusting the women and men who work at the careface.

Secondly for me being authentic and keeping social care real – means that we have to encourage and embed new models of delivering care and support at local level, not just on environmental sustainability grounds but for community cohesion and collective support. Increasingly I think we will have to ensure that we give people the tools of compassion and skill to support one another. We may in the future need to rely less on formal approaches. We need to invest in our communities so that they can become even more effective at delivering care at local level. But critically that needs a population and a people because ultimately buildings or organisations count for nothing unless you have people.

Thirdly for me keeping social care real, must be about the wider political and fiscal system owning up to the reality that social care is a profound economic driver and contributor to our economy not least for our rural and remote economy, and it is embarrassing that we have politicians and financiers who didn’t even include social care in the Ten-Year economic strategy which was recently published. It is time to value the women and men who work in and who use supports and care.

And lastly and maybe most importantly, keeping it real means that at a time of economic and operational challenge we must never lose the essence of social care – which is NOT about just about providing services and supports, not doing to and for someone, but allowing that person to flourish and grow, thrive, and achieve their full potential. Social care is not about maintenance it is about creativity, it is not about speaking for but enabling someone to discover their voice, it is never predictable and safe but always risk-filled and unchartered. Because social care is an enabler of life not existence- so we must urgently discover its power to prevent, to keep people independent and to help them enjoy being part of their local community as full citizens.

In the making of our tomorrows, we must never forget the ground on which we have built our culture and communities. My antecedent John Campbell complained to the Napier Commission that the land left to them by the greedy and corrupt factors was too peaty and so not able to grow anything – all he wanted – all the crofters of Skye for whom he spoke wanted – was land which was able to provide not riches unknown, but a living fulfilled.

Keeping it real for social care is first and foremost not about creating new models and systems, new structures, and edifices, even if we call them a National Care Service – but about doing what matters to the disabled crofter in a Skye glen; the youth struggling with mental health issues in Dingwall; the care home resident in Inverness fighting her dementia or the person living in Wick who has struggles with getting up in the morning.

And if we keep it real for them then we will have done all that we should.

Donald Macaskill

 

 

 

Scotland lights up in celebration of carers

To mark Homecare Day, notable buildings and landmarks across Scotland will be lit up in yellow to celebrate care at home workers and other social care staff on the evening of Thursday 22 September 2022.

Homecare Day is an online event organised by the representative body for independent social care providers in Scotland, Scottish Care. Taking place this year on Thursday 22 September, this event aims to raise awareness of the crucial role of care at home and housing support services in supporting older and vulnerable citizens across the UK.

To be able to stay in the place you call home and to remain around family, friends and community is a desire many of us have, maybe most especially when we are ill or requiring support and care. It is this independent living that thousands of homecare staff enable people to achieve every day across the UK.

Care at home staff has continued to support some of our most vulnerable people in their own homes, ensuring their health and safety whilst combatting various challenges. They provide support not only to individuals but their families too. Recent months have also seen unprecedented demand in home-based care organisations, despite this, the homecare workforce has rallied together and gone above and beyond their roles to deliver quality care.

Scottish Care, along with the Partners for Integration Team have been organising this ‘Light Up for Carers’ initiative. This campaign is supported by the Scottish Government, the Scottish Parliament and the Care Inspectorate. It is also supported by the SEC and Health and Social Care Partnerships/Councils for Aberdeen City, Argyll & Bute, Dundee, Edinburgh, Falkirk, Scottish Borders, South Lanarkshire, and West Lothian – with the light-up taking place in these areas. Together, they are calling for social care workers, providers, partners and individuals to join in the celebrations by visiting these buildings, taking pictures and sharing them on social media with the hashtags #shinealight and #homecareday22.

The buildings and landmarks taking part will include:

  • Caird Hall – Dundee
  • Castle House/Pier – Dunoon
  • Civic Centre – Livingston
  • Falkirk Wheel – Falkirk
  • Granton Gas Tower – Edinburgh
  • Hamilton Town House – Hamilton
  • Marischal College – Aberdeen
  • McCaig’s Tower – Oban
  • Ness Bridge – Inverness
  • OVO Hydro – Glasgow
  • Scottish Borders Council HQ – Newton St Boswells
  • St Andrew’s House – Edinburgh
  • The Kelpies – Falkirk
  • Victoria Quay – Edinburgh

These structures will be lit up in the colour yellow, to symbolise the flame of a candle. This is in line with another campaign started by Scottish Care during the Covid-19 pandemic, where candles are lit every Tuesday at 7:00 pm to give thanks to all those who provide care and support during this time and in memory of all those we have lost to Covid-19.

The social care sector shows us caring, resilience and compassion at its best, yet this workforce is often undervalued. Their dedication, professionalism and commitment in delivering high-quality care every day of the week, is something that deserves to be recognised and celebrated widely. This is why campaigns like Homecare Day and Light Up for Carers are extremely important, they offer an opportunity to give recognition to the sector and their workforce.