Guidance for GP practices on ACP Conversations with People with Dementia living in the Community during COVID-19

The Chief Medical Officer has issued new guidance for GPs and primary care practitioners on managing Anticipatory Care Planning conversations with people with dementia and their families and carers.

Please see below for letter and guidance.

Chief Medical Officer - final version - SGHDCMO(2002)24 - ACP guidelines - 11 September 2020

Dementia - COVID-19 ACP guidance

Webinar: National analysis of hospital discharges into care homes – 17 September

Public Health Scotland are undertaking a review of hospital discharges into care homes (March-May 2020), commissioned by the Cabinet Secretary for Health Secretary for Health and Sport.

This work will identify those who were discharged from an inpatient hospital setting into care homes during this period, describing their COVID-19 status and relationship between discharges and COVID-19 outbreaks and mortality.

The data included in the publication will be aggregated and reported at Health and Social Care Partnership or Healthboard level.

The team are keen to engage with care staff, managers and providers about the work which is underway and future potential insights, sharing their methods and plans moving forward.

The team provide a short presentation and welcome dialogue to answer any questions during this webinar.

This webinar session will take place on Thursday 17 September, between 10 – 11 am and will be hosted by our CEO, Dr Donald Macaskill. He will be joined by:

  • Scott Heald, Head of Profession for Statistics, Public Health Scotland
  • Fiona Mackenzie, Service Manager, Public Health Scotland
  • Jenni Burton, Clinical Lecturer, University of Glasgow

This webinar is for Scottish Care care home members, details to join are available on the Members Area of this website.

Updated guidance – COVID-19: allow families equal access to visit dying relatives

The Scottish Academy of Medical Royal Colleges (the ‘Scottish Academy’), the Royal College of Physicians of Edinburgh (the ‘College’), Marie Curie and Scottish Care have co-produced new guiding principles, designed to ensure that dying patients in Scotland are treated humanely, compassionately and with dignity during the COVID-19 pandemic. They want the Scottish Government to adopt the guidelines as a matter of urgency.

The guidance is available on: https://www.scottishacademy.org.uk/covid-19-allow-families-equal-access-visit-dying-relatives-guidance-was-updated-september-2020

 

The pain of separation: are we creating an abnormal normality?

When I was at school my English teacher brought many poets to come and read to us. I probably didn’t appreciate then just how lucky I was. I do now. I can remember many and have forgotten more. But one I will never forget because he spoke in the timbre of my own first tongue with a rhythm I related to and a language I felt inside me was Norman MacCaig.

He wrote:

Aunt Julia spoke Gaelic
very loud and very fast.
I could not answer her —
I could not understand her.

She wore men’s boots
when she wore any.
— I can see her strong foot,
stained with peat,
paddling with the treadle of the spinningwheel
while her right hand drew yarn
marvellously out of the air.

Hers was the only house
where I’ve lain at night
in the absolute darkness
of a box bed, listening to
crickets being friendly.

She was buckets
and water flouncing into them.
She was winds pouring wetly
round house-ends.
She was brown eggs, black skirts
and a keeper of threepennybits
in a teapot.

Aunt Julia spoke Gaelic
very loud and very fast.
By the time I had learned
a little, she lay
silenced in the absolute black
of a sandy grave
at Luskentyre. But I hear her still, welcoming me
with a seagull’s voice
across a hundred yards
of peatscrapes and lazybeds
and getting angry, getting angry
with so many questions unanswered.

Norman MacCaig’s ‘Aunt Julia’ is now one of the poems taught in Scottish schools as part of the exam curriculum. I’ve always loved it. Aunt Julia lived on Scalpay on a croft not unlike that of my own family on Skye. She only spoke Gaelic and no English. Again, something that resonates with me as I only learnt to speak English ‘properly’ after I was five. She reminds me of my Aunt Effie in black boots and black skirt, whose apron painted a canvas of egg stain, peat and flour. Even though they could not share a language MacCaig adored his aunt, as I did mine. In words of poignant regret, it was only after her death that MacCaig learnt enough Gaelic to have been able to communicate with her. Now she is absent, his questions lie unvoiced and unheard. There is a separation that nothing can bridge. So many questions unanswered and he is angry.

To be absent from the hands that caressed you every day of your life; to be invisible to the face that woke your dawn with a smile; to be silent to the lilt of voice that spoke as music in your ears; to be distant from the touch that cradled your pain and held your laughter … that is separation.

To be separate from those we love and those whose bone has become the very marrow of our being is an ache which can never be put into words or remedied with any solace. If one has power over it happening, it can only be a conscious and deliberate action if it is for the protection of that very love whose absence creates ache and tear.

This week I want to write about separation.

Getting the balance right between keeping people safe from a pernicious virus and enabling individuals to be restored to the fullness of relatedness was never going to be an easy task. I have been reflecting on whether or not we have got this balance right in the last week partly because of a mounting unease within me and partly because of the tear-inducing correspondence I have been receiving, I have read so many Guidance documents and suggestions from across the world about how it is possible and what steps have been taken to restore a balanced safe normal to older people’s residential care including this week taking part in an international conversation.

I have written before that I think the early measures taken to exclude visitors and shut down our care homes were entirely legitimate and proportionate because the threat of the virus to life was self-evident. It was not an easy thing to do but restricting people’s human rights was acceptable and the right thing to do at the time. As we began to understand the danger of asymptomatic transmission, as a nation we have escalated testing of staff to the level it is now, and we have used PPE, especially masks, to the level we now do. As a result, and because of the wider actions of others in lockdown we have significantly diminished the impact of the virus though as witnessed in the last few days the virus is still present and can tragically still take life in care homes and community.

Last Thursday was the 25th week since the start of lockdown. In the last few weeks we have introduced visiting outdoors and then extended it, started visits indoors and on Thursday there was an announcement about the return of visiting professionals and the greater use of communal space.

But 25 weeks on it is still the case that thousands have not been able to meet up because of the restriction on numbers and the capacity of care homes to staff and supervise visits, because of the Scottish weather and more recently because of local lockdowns and decisions to close care homes to visitors.

There is now a growing anger in the wider care home community about the proportionality of many of the restrictions which in the initial Guidance seemed appropriate. People are weary of being separated and they are struggling to see the justification for what they perceive to be a disproportionate removal of the rights of those in care homes. I have reflected elsewhere about how we have failed to adequately hear the voice of residents and are increasingly, I am afraid, diminishing the human rights of citizens with capacity who happen to reside in a care home by failing to allow them to take decision and action in an autonomous way.

If some form of separation is necessary for protection then the way in which we do it simply has to change.

We have to get better at including and involving families not just to help them understand what Guidance says but to take control and co-write that Guidance so that they are more in control of decisions. Family members are not visitors into the lives of their loved ones they have the right to do be present (with consent) and no-one should diminish that right over such a long period of time without the most profound justification. Clinical paternalism, public health risk aversion or political caution have their place but we must also find a space for the exercising of the rights of residents with capacity to knowingly take control of their decisions and the risks they wish to take providing others are protected. We are witnessing on a daily basis that people are switching off their lives having decided that there is no point in living in this twilight existence of separation and absence. The distressing effects on the mental health and wellbeing of residents and family members alike is  a scandalous trauma.

We have to become more proportionate in the rules and requirements we make. I have yet to see any clinical or scientific reason why a family member wearing appropriate PPE cannot sit alongside their loved ones and hold their hand or stroke their face or feed them their meal. We have to encourage protected touch rather than strip physicality away from encounter.

We have to banish the distance of togetherness by removing the 2-metre distance requirement when people wear appropriate PPE. If a professional carer can be close then why can family not do the same?

We have to get to a stage where we prioritise the new faster tests that are being developed for family members seeing them as critical and essential key workers in the lives of their loved ones.

We have to extend the time that family can be together and get to the stage where there is more control for individuals.

We have to restore privacy to individuals so that they can meet and be together without supervision or oversight. Care homes are not prisons nor are care staff wardens for the behaviour of others.

We have to allow people to go out in the community and not expect them to isolate themselves for fourteen days when they come back to their own home. Which one of us would go out to the shops or for a meal and then imprison ourselves for fourteen days?

There is, I believe, much more that we can and must do. It is clear that we will be living with the pain of separation for some time. We can lessen that pain by ensuring that the times of togetherness are as normal and as natural as they can be. At the moment I fear we have simply created an abnormal new normal.

Donald Macaskill

 

 

Scottish Care’s statement on Covid-19 testing in care homes

Over the last few weeks it has become increasingly evident that there has been both a disruption and delay of the weekly staff testing regime that is required of care homes.  This has been documented in numerous HSCP Partnership forums, telephone calls and emails from care home providers highlighting concerns over delays in receiving test results and a considerable number of test results returned as inconclusive. Since the 2nd week in August there has been a gradual slowing down in the time taken for test results to be returned.  This has seen an increase from a 1 – 3 day waiting period initially and a very high level of response to around 5 and 6 days and incidences of 7-10 days for those tests that were undertaken the week commencing the 24th August.

This timeframe can be connected to the opening of schools across the country which saw a dramatic increase in the request for tests from families whose children were displaying COVID symptoms. It also relates to increased demand and problems directly associated with the UK Government Social Care portal.

These circumstances mean that staff are currently in the position of being asked to undertake another test while not having received the results of their previous test.  This understandably has generated a lack of faith in the integrity, resilience and rigour of the National Testing programme which in turn puts at risk their commitment to undergoing tests.

The importance of these issues cannot be understated as the weekly testing regime has a critical purpose of protecting residents from staff who may be unknowingly carrying the virus.  The impact will be felt also in staffing levels and sustaining service delivery as infected workers will pass on the virus to colleagues and staff absence levels will rise.

In addition, a robust testing regime is a key requirement of enabling family members to visit their relatives in care homes and as autumn and winter starts we need to do everything we can to ensure that indoor visiting is protected. We have a real concern for the coming weeks and months as further impacts will be felt not least from the return of Universities and Colleges and the remobilisation of NHS services.

Scottish Care acknowledges that Scottish Government officials have been very responsive to our concerns and have been working hard to address these issues with the UK Government Social Care portal. The UK portal system has been unresponsive to the needs of the care sector in Scotland. We now believe that it would be in the best interests of both staff and residents if the whole testing of staff was taken over directly by Scottish Government.

A vision for technology & digital in social care

Scottish Care would like to thank everyone who participated in our 3rd annual technology event – Care Tech 3.

This event saw the launch of ‘A vision for technology and digital in social care’  which is available below.

This vision was informed by Scottish Care research, evidence reports, wider design research in the context of health and social care and from the knowledge of the Scottish Care membership.

The intention of this vision is to provide a tool that inspires dialogue across the social care sector and in collaboration with our wider partners to collectively engage in critique and debate in evolving the ambitions and resulting pathways towards realising the potential of technology and digital in social care. 

A vision for technology & digital in social care-2

Workforce event – 16 September

A Salute to Care Managers: recognising the importance of your own wellbeing 
 

We are delighted to welcome you to join us for our next workforce event ‘A Salute to Care Managers: recognising the importance of your own wellbeing which will be held online on Wednesday 16th September 2020 between:

  • 10:00 am – 12:00 pm – Homecare 
  • 2:00 pm – 4:00 pm – Care home

The event will focus on the wellbeing of care home and homecare managers and the challenges being faced providing ongoing support for staff and caring for your own personal wellbeing at this time.  We aim to give those participating the opportunity to discuss their own experiences dealing with COVID and to gain feedback from care managers in the social care workforce as to their specific needs in this area. 

  • Session 1 – NES Psychological 1st aid module – how this can benefit managers with their own wellbeing and supporting their staff.
  • Session 2 – Care provider wellbeing initiative – introduced during COVID, how this has been implemented and the impact on staff wellbeing.
  • Session 3 – SSSC manager wellbeing and support – this will be an interactive session for managers to feedback what wellbeing resources / initiatives have been most helpful and effective and where this work can continue to focus to best effect.

Further information including the programme will be sent out with invitations to the event over the next week, if you wish to attend please email [email protected]

Homecare Festival: 7-9 October

You may be aware that we are organising a virtual event – ‘Homecare Festival’ – which will take place from Wednesday 7th to Friday 9th October. 

The Homecare Festival is an important opportunity to recognise the crucial role of care at home and housing support services in supporting our older and vulnerable citizens.

There will be a series of online sessions over this three-day period, bringing together a range of speakers and panellists to highlight challenges faced by the care at home & housing support sector and to discuss the future of homecare.

Each day will have a different theme: 

Wednesday 7th OctoberRe-shaping homecare: issues of vision, sustainability and practice

Thursday 8th October: Maximising potential: the critical role of the homecare workforce

Friday 9th October: Home is where the rights are: homecare and human rights

 A draft programme for these three days can be found below.

The Homecare Festival will end with an Awards Evening on Friday 9th October to celebrate the dedicated workforce in the independent homecare sector and all the extraordinary work that they do.

Further information and tickets to follow shortly. 

Homecare festival draft programmeDM

Scottish Care responds to announcement on the review of adult social care

Scottish Care welcomes the announcement in the Programme for Government that an Independent Review will be established to explore the options around the future of adult social care in Scotland, including exploring a national care service.

Scottish Care has long argued over many years and under successive administrations that adult social care needed urgent reform and resourcing. Such reform needs to be rooted in the individual human rights of citizens. It fundamentally needs to understand that social care is NOT the same as health care and therefore we cannot just copy the NHS and use it as a template. Critically social care involves life-long services and supports at the heart of which citizens must be able to have control and voice.

Dr Donald Macaskill, CEO of Scottish Care stated:

“It is sad that it has taken a global pandemic to highlight the faults in our social care system when those who provide and work in care have been talking about under-resourcing, lack of prioritisation and focus for many years.

Nevertheless, I am pleased to see the establishment of the Independent Review and the independent care sector looks forward to working with the Review group. Theirs is not an easy task. If we want to create a care service where people are treated equally, where regardless of your condition and life support needs you are able to get care free at the point of need, where workers are given terms and conditions which value their role then this will result in a massive fiscal outlay for all of society. It is right that we should have this debate and as a society consider the options which will lead us to having a high quality, rights based social care system.”