National Care Home Conference – programme finalised

On 16 November 2018, Scottish Care's National Care home Conference & Exhibition: A Caring Place will be held at the Hilton Hotel in Glasgow.

We are delighted to confirm the final programme for this event - the only conference and exhibition to focus solely on the Scottish care home sector. 

Speakers on the day will include:

  • Cabinet Secretary for Health & Sport, Jeane Freeman
  • Professor Emma Reynish, Stirling University 
  • John Wood, COSLA

Tickets are still available to attend on the day, so if you'd like to find out more or book a place, please click below:

Home Care Day 18: Creating bereavement standards

Bereavement is part and parcel of what it means to deliver quality care at home and housing support services. The Scottish Care report  ‘Trees that Bend in the Wind’ published last year spoke eloquently of the experience of frontline workers who built strong and personal relationships with those they cared for in the community, to then be faced with the upset and trauma of loss and the emptiness that comes with death.

In our work here at Scottish Care we have been trying to raise attention and focus on the impact that continual loss and experience of bereavement has upon the mental health and wellbeing of our frontline staff. Compounding this is the reality that there are very few opportunities for staff to be supported in their grieving and to have access to immediate bereavement care and support.

We were therefore very pleased to see a recent publication from Sue Ryder and Hospice UK adding weight to our analysis and concerns. ‘Bereavement support in Scotland’ published in October 2018 highlighted that as many as 53,000 people in Scotland could be missing out on the support which could help to support them in their bereavement. Scottish Care believes there is a particular challenge being faced by those who work every day with those who are receiving palliative care and those who are at the end of life. This is especially true for homecare staff.

The report states:

‘Nearly one third (31 per cent) of respondents say they needed additional support beyond family and friends to manage their bereavement. But:

  • Only 6 per cent of all respondents accessed bereavement support.

  • A further quarter (23 per cent) of respondents would have liked support but couldn’t access it because: they didn’t know how (12 per cent); felt uncomfortable asking for it (8 per cent); or couldn’t get the type of support they wanted (3 per cent).’

We need to get better at a structured and national approach to providing bereavement support to the 230,000 people in Scotland who are bereaved each year.

I am therefore pleased to be chairing a group of representatives from national bodies who have started to work on drawing up National Bereavement Standards which we hope will be adopted by Scottish Government and wider stakeholders. To date the group consists of, amongst others, representatives from NHS Education Scotland, the Integrated Joint Boards, Scottish Care, mental health organisations, the Care Inspectorate, Health Improvement Scotland, the Scottish Ambulance Service and voices from General Practice and specialist palliative and end of life care.

It is our hope that we have started a journey which will help to give greater focus to and priority around bereavement across Scotland. As I have stated elsewhere:

‘Good bereavement support is no optional extra, it is rather fundamental to a society basing its character on dignity and human rights. Good bereavement support renews and restores, it can give a sense of purpose and direction, for many it’s what has literally saved their lives.

‘I fear that if as a society in Scotland we fail to enable and resource those who do the work of care to grieve properly and to enrich them through good bereavement support then we are sowing the seeds of a harvest of regret and despair.’

https://www.scottishcare.org/scottish-care-news/blogs/bereavement-support-is-not-an-option-latest-blog-from-our-ceo/

Dr Donald Macaskill

 

Home Care Day 18: Developing local partnerships & improving palliative care provision in the community

Developing local partnerships and improving palliative care provision in the community

A good death at home requires integrated health and social care services to prioritise person-centredness and to nurture the workforce who support death and dying.  Scottish Care recognise that there are a number of resources to support staff care for people at the end of their lives, but through our Supporting Solace research it was identified that there is little co-ordination of these resources, and access to them varies considerably.  As a result, one of the recommendations contained in our Trees that bend in the wind report was the need to maximise the timely and effective use of palliative and end of life care at a local level and develop more joint working and learning.

This recommendation was embraced by Scottish Care’s Elaine Rae (Local Integration and Improvement Lead for Glasgow), Baillieston Community Care and the Prince and Princess of Wales Hospice.  They undertook a test of change which involved care at home staff experiencing working life in the hospice, and hospice staff shadowing workers involved in PEOLC in the community.   It was hoped that the learning from this process would play a small part in developing the wider narrative of effective change and better joint working, learning and collaboration in Glasgow.

It achieved this – and more!  Activities and learning are on-going, but there continues to be a real sense that joint working is an effective way to plan and develop learning opportunities which will support staff across the workforce to transfer and integrated knowledge into observable improvements in practice.

We’re delighted to share some reflections from one of the participants in this test of change.

Thank you to the following:

David Reilly – Baillieston Community Care

Lorna Harrison – Baillieston Community Care

Gillian Sherwood – Prince and Princess of Wales Hospice

Jane Miller – Prince and Princess of Wales Hospice

Elaine Rae – Local Integration and Improvement Lead (Glasgow) and Regional Lead – Scottish Care

 

Reflections by Lorna Harrison – Baillieston Community Care

I have mixed feelings about my experience at The Prince and Princess of Wales Hospice.  I knew this wasn’t going to be easy, although didn’t think it would affect me the way it had. 

After leaving the hospice on the first day I thought I could keep my emotions together until I got home but barely made it to my car.  This was upsetting for me and I can’t begin to imagine what these patients have in front of them.  So many questions were going through my mind.  There were so many emotions I had witnessed in the first day alone and I felt some of the emotions that these people were going through.  Acceptance, peace, anger, anxiety and fear. 

The two patients I sat in with on the first day were two totally different situations.  How can one person be ok with dying and the other person be so frightened and upset?  There is a lot of factors that I didn’t really think about up until now ie not wanting to be a burden to others, the fear of upsetting relatives, not wanting to face the truth and the thought of being cheated of life?

Most of all being able to talk about dying.

Jane had kindly given us the anticipatory care plan which we can now talk to our service users about.  I have been working along with my colleagues to create a new care plan of our which now incorporates some of the questions in the anticipatory care plan. 

I feel we as a provider need to get better at talking about dying.  We need to liaise more with heath care agencies and more importantly they need to liaise more with providers as we seem to be the last to know important information on how to care for people in the community who are receiving palliative care.  

We can all talk about dying;  I think it is the fact that no one likes to talk about it that is the problem.  I used to think of dying as a taboo subject but after my experience at The Prince & Princess of Wales Hospice, I can talk about dying and I will talk about dying.

 

 

 

 

Home Care Day 18: Palliative and end of life care blog from Katharine Ross

I’m delighted to say that my two sons are now of an age when I can introduce them to some of the cinematic delights of the 1980’s that I enjoyed as a teenager.  We recently had a movie night together, watching Back to the Future – a well-known and much loved American sci-fi movie about a boy who accidently travels back in time from 1985 to 1955.   One of the more dramatic scenes involves the film’s main character, Marty McFly, experiencing his existence slowly being erased – along with that of his much-loved family.  This was a direct result of Marty inadvertently altering the future through a series of decisions and actions whilst being ‘back in time’ (cue cheerful humming of the pop-rock-legend Huey Lewis and the News hit single…)

The theme of losing somebody, or part of oneself, very much made me reflect on recent Scottish Care reports - notably Trees that bend in the wind’, which explored the experience of front line support workers delivering palliative and end of life care (PEOLC) and Fragile foundationswhich sought to uncover the largely hidden world of older peoples’ mental health and that of the workforce which support them.  During one of the research focus groups we conducted as part of our Supporting Solace project, one of the participants described caring for somebody at the end of their life so eloquently.  They used the phrase “We are the trees that bend in the wind” to describe the ways in which they adapt, change and are changed by the circumstances of the dying journey.  It implies pressure, strain and the risk of breaking - or at least of losing part of oneself in the process.

Palliative and end of life care is premised on impending loss and as such can be frightening, traumatic and lonely - often pushing people to their absolutely emotional limits, and sometimes beyond.   It can also be beautiful, peaceful, comforting and full of love and I can certainly relate to this juxtaposition of emotions during my time as a director of a care at home organisation in Edinburgh.  While it was an absolute privilege to be part of so many people’s dying journey, it was not without its challenges.

Sadly, there continues to be a lack of meaningful and timely partnership working arrangements with PEOLC specialists and support services which can often result in care at home organisations and their workforce feeling isolated, afraid and unsupported.  This often manifests in the workforce feeling undervalued and insignificant or as one support worker said, “….we are at the bottom of the pile.”  There is also substantial pressure on support workers to communicate the dying journey - both to the person who they are support and their family.  As one care worker said, “I don’t know what to say….it can be overwhelming.  We try and say what we think is right.  It just comes out.  You feel like you’re apologising all the time.”

The loss felt for somebody you have loved or cared for deeply can be overwhelming and all consuming.  I once heard somebody say that “Grief is like wearing a very tight pair of shoes that you cannot take off.  Just as you can think nothing else other than your feet hurting, so also in your grief you can think of nothing else but your loss.”  The death of an individual who has been receiving focused care – in their own home or in a care home - cannot be seen as end point on the palliative and end of life care journey for care workers and family members.

Unfortunately there is a palpable absence of bereavement support for the social care workforce who, in reality, provide the vast majority of palliative care in Scotland.  There’s an urgent need for the development and co-ordination of high quality post-death support services which are designed to be easily accessible for care home and care at home staff involved in PEOLC.  I am delighted to be working with Scottish Care colleagues, NES, the Care Inspectorate, Glasgow University and others to identify how we can put into practice the development of better, more integrated bereavement support at a policy and practical level on a national basis.  We will be sharing more information about this project with you soon.

Unlike Back to the Future it’s going to take more than a modified DeLorean and a fully functional flux capacitator to avoid yet more people losing part of themselves caring for people at the end of their life – and to prevent the sector losing a dedicated, committed and skilled workforce.

 

Home Care Day 18: Primecare Health share the story of Jessie

If you are talking about how to support the #peoplethatmatter, then you have to mention Jessie the recruitment and welfare vehicle!

#homecareday18

Primecare’s intention is to create a culture of support and wellbeing for its staff, providing a central hub for staff to be able to access in and around their local working area, Jessie holds a stock of gloves, aprons and uniforms as well as blether books and hand sanitizer. We offer staff a place to have an informal chat, as well as a shield from the cold, and a hot drink for staff who walk  their run  to visit clients in all weather.

The Recruitment and Welfare vehicle is in its infancy, however has so far received very positive feedback from staff. Our service users have also had the opportunity to share in this experience as Jessie has made appearances at our recent service user's forum and the MacMillan coffee morning, as you can see from the photos taken at the charity coffee morning, this gave them immense pleasure as everyone was delighted to be a part of this new venture.

Primecare Health Ltd

Home Care Day 18: HRM Homecare share details on Buy a Meal Campaign

As part of the #peoplethatmatter hour of #homecareday18, HRM Homecare have shared the details on their Buy a Meal Campaign - demonstrating how a small idea can blossom to really benefit service users.

#homecareday18

Buy a Meal Campaign: Kindness at Christmas

It is almost one year since the team at HRM Homecare came up with an idea that had a huge impact on service users over the festive period in 2017. Since it is Home Care Day, we thought it would be a great opportunity to blog about the Buy a Meal Campaign.

Assistant Service Manager Stacey Crawford first put forward the concept, along with some of our Lanarkshire-based support workers in mid-December last year. They wanted to fundraise to buy Christmas dinners for service users without family or friends.

Without knowing if they would be able to pull it off in time, the team set about fundraising at the busiest time of year in a Care at Home service. They weren’t at all put off by the added stress and strain in an already pressurised work environment – because they cared!

They worked effectively together to find innovative ideas that would raise enough funds to meet the target set to buy a Christmas dinner for all the people identified as without their own network to provide a festive meal on 25 December.

Workers were asked to donate £1 towards the Buy a Meal Campaign. This money helped purchase meals, as well as the other festive treats like mince pies, Christmas cars and boxes of chocolates for those service users who had no one to prepare a meal for them or visit them on Christmas day.

Thanks to their super efforts, the fundraising goal was achieved in only a few days, the level of buy-in to the initiative was so heartening. After seeing the organisations’ support workers and managers put so much effort into raising £230 in such a short period, we decided to match the funds – meaning we had a healthy pot of £460 to cover the costs of providing everyone identified with a Christmas parcel.

The kindness continued. Staff also volunteered to give their own time on Christmas day itself to support both the service users and their colleagues to deliver meals and spend time with those who were on their own on Christmas Day. On 25th December their teamwork was evident out in the community.

Because of this innovative idea and caring practice, the Buy a Meal Campaign made a real difference to the lives of 36 of HRM Homecare’s most vulnerable service users in Lanarkshire, turning just another day into a special Christmas celebration for them! The impact was heartfelt pleasure and joy from people who were otherwise going to be alone on Christmas day.

The team at HRM Homecare truly went the extra mile and wholeheartedly demonstrated by their actions what care is really about: selflessness, warmth, dignity and empathy for other human beings.

But it wasn’t just the service users who benefitted. It raised morale across the board, and teamwork and friendships among the whole care team flourished – support staff out on Christmas day itself were incredibly proud, and rightly so.

Any monies left over were donated to Alzheimer’s Scotland.

I couldn’t be prouder of my staff. They showed real caring and compassion, giving of their own time and money – especially at Christmas. They put the needs of those less fortunate before themselves. This may seem like a small act but all too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment or the smallest act of caring – all of which have the potential to turn a life around.

This year, the staff are aiming for a bigger and better campaign, not just in Lanarkshire bit throughout our entire organisation. Fundraising efforts were kickstarted by donating £1 every week to dress down on a Friday. The staff have definitely lived up to our motto at HRM Homecare: We Care.

 

Lynn Laughland

Managing Director, HRM Homecare

Home Care Day 18: What a Difference Good Care Makes

In 2017 Scottish Care commissioned What a Difference Good Care Makes. This is a film created in collaboration with Michael Rea, an experienced documentary film maker with a long standing relationship with Scottish Care and a proven ability to capture the diverse voices of those working in and receiving social care.

We think this is a fantastic film that demonstrates the impact care at home staff can have on the lives of service users - these really are the #peoplethatmatter

#homecareday18